Following the sudden death of my father aged 67 in his sleep, I was diagnosed via Ajmaline test as having Brugada Syndrome (can't remember the type!) - the wonderful staff at the local hospital have looked after me incredibly well but are suggesting treatment via lifestyle choices rather than an ICD. I also have early repolarisation which is said to be the cause of the permanent ache I suffer in my heart.
I understand totally the balance between risk of operation vs risk of Brugada but I'm really struggling to come to terms with it. Basically I'm taking a risk with something that, if it happens, there is only one outcome. It's enough to stop me sleeping as I fear that I won't wake up.
What are my options? Can I ask for an ICD? Or can I have one fitted privately?
I understand there are risks with an ICD being fitted and that it will change my lifestyle (slightly but not massively) but it's surely the *only* treatment that lowers the overall risk of me suffering the same event as my father. Let's face it, I can't get life insurance now so it's not like the ICD will make that worse.
Is there someone locally to me that I can talk to before I approach my consultant? I'm in Kent.
Hope you can help!