Brugada Syndrome diagnosed after having Covid19

[RobertW213]

Hi everyone. I contracted Covid19 and was admitted to hospital because my body wasn’t beating it. I had extreme chest pains and it wasn’t getting better. I was then diagnosed with Brugada Syndrome as they’ve found it on repeat ECG scans. I’m worried and have no one to talk to that understands my fears.

[ArrhythmiaAlliance]

Hello Robert, we have information on Brugada syndrome which hopefully will reassure you. You can download our "inherited arrhythmias and genetic testing" booklet from heartrhythmalliance.org/aa/...

If you have any further questions, please do not hesitate to get in touch [e-mail]

With best wishes,

Rachel - Arrhythmia Alliance Patient Services

[jeanjeannie50]

Sorry to hear that you've been diagnosed with this Robert. I'm afraid I know little about the condition other than what I've just read on the internet. I have atrial fibrillation and flutter and that's bad enough, so really feel for you.

I wonder if you would get more responses if you put a message on the Health Unlocked Heart Foundation forum or the AF Association one. I'm guessing you would like to speak to others who have been diagnosed with the same, that's certainly what I would want to do if I were in your situation.

Wishing you well.

Jean

[jeanjeannie50]

Try this link:

healthunlocked.com/bhf

Then search for Brugada

[RobertW213]

Thank you so so much Jeanjeannie50.

Rob

[Millie1980]

Hi Robert. I was diagnosed with Brugada syndrome 2 years ago. I kept feeling dizzy and passing out. I kept having palpitations as well. I was fitted with a loop recorder for about a year and this helps them to how often you get it and whether they life threatening. I was fitted with an ICD 2 weeks ago and I feel a lot safer n a lot better but I can feel when my ICD is given me extra heart beats. From what I've read, you can still have a normal life with brugada syndrome but my life hasn't been normal since I started fainting 2 years ago and I av been so worried. My best advise is try and live a healthier life style and eat healthy cos that helps. I wish you all d best x