Hello im a new member with problems with arrythmias, fast heart rate & much decreased mobility due to the heart issues and also to ME..

[sam1971]

Im feeling really hopeless as am so unwell and have been worsening for many months now. I havent found anyone quite like me despite internet searching I get pvcs that cause symptoms, plus have just started fainting..twice in.last two weeks ans i feell too ill.& fatigued to.get out of bed( i cant walk more than a v short.distance Last night.it felt like my.heart paused for several seconds during which time i blanched red like a post bix for about five secs and felt.dizzy & odd. It was horrible.. In the nught i woke up with my heart going at 130..sinus i think.. and v hot & sweaty in my chest & neck. This is happening most nights I have no quality of life at all as cant do anything at all..Any.support or advice much appreciated..

[Omithilion]

Hi Sam.

I hope you've sought medical help/assistance?

If I may be so bold, I think it's possible that you could be suffering from anxiety (As well as a heart disorder), it's very common, and understandable, to feel anxious when something in your body (Especially something as crucial as your heart) isn't right.

But sometimes the anxiety can make it worse, I think think you may be experiencing that! I am no doctor, but I am a psychologist, so I have some insight.

I have just had a tiny heart attack, and my condition is currently being investigated. Despite turning to GP's, specialists and such last year, I still have no diagnosis. I was given an Event Recorder (As I have severe palpitations etc.), in an attempt to catch the event. I refused all drugs. I had the heart attack the day before yesterday (ironically on my birthday of all days), I am now on 2 types of heart medication, and I'm being fast tracked for treatment. I can recognize a lot of your symptoms, but others are alien to me, sorry. BUT I think, as mentioned, that some of your symptoms can be subscribed to anxiety.

I turned to a psychotherapist as soon as I was told that there IS something wrong - I happily lived in denial for a few years, because this type of thing happens to the person next door. I have found it very helpful to deal with my anxieties, distress, fear and overwhelming anger head on. I have found it very difficult to accept that something is wrong, and that I was born with it.. What kind of CR*P is that anyway? I'm young, fit, healthy, take good care of myself, but still.. Boom.. Anyway, seeking help has meant that I am accepting what is happening, I still feel sad sometimes, but mostly I am okay. I'm still employed, working long hours in a stressful environment.

Has your doc told you anything helpful? Assuming you've seen one.

Regards,

Maria

[Hidden]

Hi Sam, I know nothing about your conditions really, except the arrhythmias which I also have. As Omithilion has said, anxiety can be a big problem. I had one night when I thought I was a gonner, my heart was shaking violently and to be honest I was scared to dial 999, daft as that sounds, because I thought it would just stress me out even more. So I took an anti-anxiety pill/tranquilliser which my GP had prescribed, and crossed my fingers. It worked within 20-30 minutes. It reduced my attack from feeling like I was going to die to just a slight wobble so I could sleep.

Since having that experience, and a couple of lesser ones, I have learned that my anxiety was making the situation a lot worse. And now because I know that, I don't need to take the pills. Don't know whether that makes sense. I've heard other people say they feel less anxious because they know they have a pill to take if they need to, so they don't need to take one!

Just a thought, hope something works for you. It's so dreadful if you can't sleep.

Best wishes

Koll

[dawnsolomon]

Hello I am 19with diabeties and tachycardia, with many palpitations.I am to at a loss and don't know what to do. Off go get checked and judge have faith! !!! Good Luck to you!!

[patriciaol]

Hi Sam - very strange - I have had ME for over 20 years and now the same symptoms as yours have manifested themselves in me. I have had two major episodes of actually passing out whilst visiting hospital. wired up. oxygen then sent home when symptoms subsided - no follow up. Then two weeks ago had minor surgery at another hospital - went into a spasm and was diagnosed as Wolff Parkinson White.Went privately to see specialist and am waiting results of scan for treatment. I have been ignored since the symptoms began over two years ago. Insist on tests - difficult with ME and all that is going on. I nearly had a breakdow last week due to feeling so helples.

Good luck

pat