Is there any way of saying "Enough", I do not want to receive anymore medical care or medications, they are doing me more harm than good!

[Adlon57]

The medication I am receiving is causing me more pain than anything else! It is getting worse, more endless appointments, more reactions, more pain, getting ABSOLUTELY NOWHERE! I just want to stop all this treatment, just bare survival medication, I have at least three life threatening conditions, medications from one conflicting with another! I don't want to 'survive' on an endless supply of medications, injections, [surveys?], my body has had enough, another condition starts up, another endless road to go on to, My relatives and friends are affected by my general health "What another appointment?" "What condition do you have now?" "You're not looking very well today?" I may look okay outside, do you want to see the mental and physical scars inside? I don't want anymore of this worry to bring on them! I have absolutely nothing to look forward, dementia and senile decay beckon. The world today I cannot comprehend, lost touch with decades ago! A push button society going nowhere! I am stuffed full of endless medications, my system is completely mixed up, HPT high pain threshold, I could have a stroke "Oh just a headache?, a slashed hand stitched up no pain killers needed, pain killers in reality a thing of the past, my brain cannot figure how serious my pain actually is, bad, minor or even non-existent! Could I just say no more of these endless appointments, scan, MRI's, etc, etc, just leave me alone, maybe hopefully a week's time go to bed, and die in my sleep, peacefully? They might mean well the medical world, but quite honestly this 66 year old lab. rat has had enough!

[piglette]

You are the one who will have to say NO to the medical profession.

[Adlon57 in reply to piglette]

I know piglette the FINAL decision is up to me, in my court at present!

[Adlon57 in reply to piglette]

Thanks piglette a good friend over many years, all the medical facts are now known 🤞 the ball is now firmly back into their court!🖕🤭

[piglette in reply to Adlon57]

Fantastic, that is good news.

[Adlon57 in reply to piglette]

Sent an Oncology survey back to sender with all 'meaty' details meant to be 'anonymous' BUT I put dates even my date of birth, SOMEONE will look a bit deeper🕵️‍♀️👌

[hunter5582]

Hello my friend. Sorry to hear you are in such dire straights. The answer to your question is in two parts.

The legal part of the answer is that you have a fundamental right to suspend all life extending-preserving-saving treatment at any time you deem it appropriate to do so. No one can force to to engage in any treatment you do not wish to receive. There is a process to put this in place for when you are no longer able to voice your wishes for yourself. All advanced nation's healthcare systems have a process for this. It can be through an Advanced Directive. There is also, in some places, a Physician Order for Life Sustaining Treatment (POLST). In the POLST orders are entered that you are to be given palliative care only. In addition, a Do Not Resuscitate (DNR) order can be entered. These orders can be accompanied by an alert bracelet or necklace that you can wear to alert emergency providers to the orders.

The other part of the answer has to do with whether you have reached to point when it is time for palliative care only. There can come a time for all of us when it no longer makes sense to try to prolong life. No one can decide when this time is but you. The question is whether this is the time for you. Or is this a particularly bad patch that could get better? You have had your ups and downs in recent years. You will have to decide what it is that you truly wish at this point,

Know that we do not want to lose you but also do not want you to suffer needlessly when there is truly no hope. Is this that time? None of us can judge that but you. Know that no matter what you decide, you will have our support.

[Adlon57 in reply to hunter5582]

Thanks Hunter, I feel I am getting very near the bottom, next couple of weeks imperative in if my life is really capable of carrying on, or not. Ironic as soon as I write this, another testing appointment comes up for ANOTHER condition? Useful advice, I reckon I will go low on this site, as I am in a very gloomy mood, I don't want it catching?

[MartinaT]

First, I want to express my deep sympathy for all the pain and distress you are going through. I was deeply saddened to hear you describe in detail these challenges, especially the increasing pain and endless treatment process.

The situation you describe is indeed very difficult, especially when treatment has not only failed to bring significant improvement, but has actually worsened your suffering. I understand your despair of continued treatment and your hope for a calmer and more dignified lifestyle.

I wish you peace,

[Adlon57 in reply to MartinaT]

Much appreciated Reply to MartinaT that was written 2 years ago, I am a more worn, but surviving individual, I have what I thought was going through a living hell of the last seven years, I am now aged 68, still in a terminal condition, presently attempting now to downsize, my family is now aware of my true medical state of health, so attempting to downsize will be taken in small steps, my local health centre is keeping an eye on me now, aware of my limitations, [a good bunch especially my GP👍] Friends on this site especially Hunter have helped on numerous occasions👌 Recent incompetence with misdiagnosed Prostate Cancer, subsequent side effects from this treatment having provided me with more life threatening symptoms, [hopefully 💩might hit the fan due to this incident🤞] I am in a more calmer mood now as friends [many medical friends and contacts I have made along the way] and family who know of the true state of me, are now essentially "leaving me alone" relief on my GP's face when we both agreed that I knew what was in front of me! They cannot do anymore for me "untreatable" but know I don't want to die in a hospital bed with tubes and wires hanging out of me! I am not in love with this existence, this world presently in this state leaves me cold!

[MartinaT in reply to Adlon57]

I know this is a very hard time for you, but I am here for you. You are not alone, and I want to hear your story. If you need any help, whether it's just to talk or to do something together, please let me know. We can take it one step at a time, and there is no need to rush to solve all the problems.

[Adlon57 in reply to MartinaT]

Thanks MartinaT I am a very independent so and so, complex, blunt, I do not like being put into boxes, not just me but my body likes to rebel against ordinary requests and questions, I am getting to the end of my quota, BUT I am a very lonely person, have not got many friends, I do not like technology, push button society abhors me, fight it with every last ion of my body! Brought up in Northern Ireland, where everybody was enclosed in a religious envelope, when I was "grilled" by my then future in-laws, I was the 'wrong' religion to her, when they were yelling at me, a life turning moment, weird but I did not and could not care what they were saying, I knew I did not love her, I belonged somewhere else, religion is a load of 💩right across the board, [later right throughout the world] at first people thought it was because I was seeking a third option, which then was either a Prod or Taig during the "Troubles" gradually realising I had found my true path an Agnostic, except going through Humanism, after I was told I was terminally ill three years ago, that lasted three weeks and saw through that weak option! I had left school aged 16, but started further education, slowly because of my bad health, I had had all my life, I have a high IQ and eventually got my qualifications. I am calmer now as my true state of health has been revealed, no more wild medical appointments, scratching of heads, acceptance that nothing more can be done for me, from either side. Presently downsizing very very slowly, weighing up ALL options, hopefully when I go it will be fast? I do have panic moments, it was never going to be easy, I am not afraid of dying, being on the verge for so long has seen to that!

[MartinaT in reply to Adlon57]

Your story touched me deeply, and shows what you have gone through as a strong and independent individual. Your life has been full of challenges and unusual choices, but you have always maintained your path and your beliefs.

Your determination and courage are evident in every word. You have faced not only physical challenges, but also complex pressures from society, religion, and family. You have chosen the path you believe is right, no matter how difficult it is.

In this process, you are not only fighting a disease, but also finding your self-identity and inner peace. Your determination and wisdom have enabled you to see life for what it really is, and not fear death, but face it with a calm attitude.

I hope you know that your story and existence have a profound meaning to the world around you. Your courage and real life experience will always be an inspiration to those who are looking for answers in difficult situations.

Whatever the future holds, I hope you will continue to remain calm and determined. I will always be there to support you if you need anything.