Dementia! Who really cares?: I was... - Healthy Evidence

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Dementia! Who really cares?

Adlon57 profile image
12 Replies

I was diagnosed with dementia in 2017. Now it has got to the stage invited by relatives for a social evening, ninety percent of the evening completely ignored! [you can see it in their faces, dementia!] I have forgotten what my doctors face looks like, even with the pandemic, invites me in, sits there looking at his b##### laptop, clicking away, "Are you feeling ok?" [why would I be visiting him?] Recent hospital visits, medical staff treat me like an imbecile [their notes open "dementia" heavily underlined!] Recently in my local cafe, they obviously have found out, call out my name, plastic smile, coffee and nothing, no quirky remarks, silence! Old friends, "sorry important meeting! see you next Wednesday" next Wednesday, repeat performance!

All I want now is a revolver, even a lethal injection, something quick! I live on my own, always preferred my own company, intelligent, high IQ, cannot understand or care for younger generation, now terminally ill, epilepsy for over fifty years, had over 400 + major seizures, my next seizure "will probably be your last!"

I'm now so tired all the time, no ambition, perpetual anger, I think I could do something, brain fog, I could do something today, could not give a sh## ! No real friends now, an historian, always mixed with older generation, who have all died, was looking forward to "retirement" I'm 65, apparently getting some sort of pension, I will be put in a home, with my claustrophobia, forget it! So much ambition when younger, health ALWAYS held me back, hated the area I live in, always have, but needed "health care" to survive, realisation my health care in this area has always been Neolithic, wanted to travel, now too late!

Latest remark from my big sister in England, "Why don't you take up stamp collecting, it's history related?" Actually thought I was living on care from another sister, who lives nearby! DOH!! My eyesight is terrible enough! I have a very rare medical condition, Schwannomatosis, even the rest of the family after fifty years with it, cannot understand it, their screwed up faces when I try to explain it to them, "it's not genetic!" [they don't believe that!]. My financial situation is dire, actually selling off bits of household furniture, and my historical research library, just to survive, because I'm a "one off" I slip between the lines in benefit 'claims'! Maybe relatives actually finding out my TRUE situation now, it's too b##### late!

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Adlon57 profile image
Adlon57
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12 Replies
BTCCET profile image
BTCCET

Bless you, people do care you know! Where's that book that you were promising us? xx

Adlon57 profile image
Adlon57 in reply to BTCCET

People might care, but due to pandemic situation and my mental incapacity, they certainly have not speaking, face to face to me ! Benefits too low, as far as I'm concerned it's like me out to pasture🥴🥴🥴

Adlon57 profile image
Adlon57 in reply to BTCCET

Thanks BTCCET for your concern! because of lack of finances, new information all indexed, proved and improved, going against the "accepted stories and legends"🙄😗and my general bad health it will have to be stored for another 200 years, that's what historical research on a true crime subject does for me, anyway?🥴🥴

BTCCET profile image
BTCCET in reply to Adlon57

I just hope that something comes along to lift you out of your bad place and that you can start to have more good days than bad! If only it was that simple eh? xx

Adlon57 profile image
Adlon57

Yeh! A good kick up the back place into a lot of good days, I deserve a good few of those!👍👍

BTCCET profile image
BTCCET in reply to Adlon57

You deserve a lot of what? Kicks or good days? 🤔

Adlon57 profile image
Adlon57

"Kicks" up the system, and a load of "good days" because I really deserve em!🙃

hunter5582 profile image
hunter5582 in reply to Adlon57

Well I agree with both my friend. Here is to kicks and better days.

Adlon57 profile image
Adlon57 in reply to hunter5582

👍👍👍

Adlon57 profile image
Adlon57

It is worse than a few complementary words and phrases, I am ignored just waiting for more accidents injuries not just to me but people nearby friends and relatives, I need help ASAP! I don't need to be eventually put into a home, the area I live in I have always disliked, I will probably become violent to all concerned! Slowly but surely I am being dissolved into the muck known as modern society! Put away and eventually forgotten about! I need fresh fields but now as my dementia increases more domestic 'accidents' are happening so less chance of that, as they increase, immediate society ignore me, 'his dementia seems to be getting worse, Ahh well!' My claustrophobia worsens with my dementia, deeper and deeper! Ironically now my financial woes seem to have lessened , but my black cloud of dementia and claustrophobia envelops me further. People might care, silly sympathetic expressions as people can identify my problem, but now being put on a 'shelf' for later possible "discussion", I need solutions to my problem now, it is just simply just THAT!🥴🥴🥴

Thetoxdoc profile image
Thetoxdoc

I really hope you have better days. It sounds like you are struggling. Hope this week brings something nice.

Adlon57 profile image
Adlon57 in reply to Thetoxdoc

Bad times good times, more bad times at present🥴Thanks anyway! Thetoxdoc👍

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