Neurofibromatosis NF2 affecting main organs?

[Adlon57]

I have NF2 and had it for many years. But recently have acquired the brown marks around top left chest, obviously not heart trouble, but causing considerable pain in that region. I can breathe normally, the pain under the skin, uncomfortable, but could it indirectly affect the heart?

[Emily_Jesper Partner Sense About Science]

Have you been to see your GP to discuss the pain? 

Have you heard of the Neuro Foundation? They have some information on neurofibromatosis 2 nfauk.org/what-is-neurofibr...

[Adlon57 in reply to Emily_Jesper]

Have got the web site address, but since I wrote my question have found I have Angina, which explains my chest pains!

[Adlon57 in reply to Emily_Jesper]

A very important site, a real eye opener for both myself and my GP, myself for the condition and so he could refer for future patients with the same condition. Suspicion by the specialists after a DAT scan for Parkinson's disease was negative, but the reading was NOT normal, a neuroma on the brain has just been suggested [yesterday]. I had complained previously of chest pains, which was wrongly diagnosed as angina, it in fact was the worsening of scholosis [curvature of the spine] a side effect of NF2, the worry of this led to shingles, by the way I'm a right hypochondriac does not help?