Almost 4 years with tbi and I've started to mumble... - Headway

Headway

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Almost 4 years with tbi and I've started to mumble and medication isn't controlling headaches, is this normal..

misswingit profile image
13 Replies

I'm 19 years old, was in a car crash 4 years ago this July, I have a number of problems, trying to list them sends my head spinning (hoping you'll understand this) but recently I've started to mumble.. I'm continually repeating myself which makes me cross.. Being me (head in the clouds/or the sand) I thought everyone was going deaf.. Today my dad confronted me, he's very worried, says it must me more than a month and I'm getting worse, he's also noticed my headaches are coming back thick and fast, I take topirimate 50mg twice a day to control them but it seems its not working at the moment. I've now had a constant headache for a week.. It's morning it felt like someone was twisting a screwdriver in my right temple. Thought I was getting better almost 4 years now I'm mumbling. Any ideas..? Anyone had anything similar? Anything will help thanks, Charlie x

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misswingit
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13 Replies
jjojay profile image
jjojay

Hi Charlie , I honestly would get to AnE or see your doctor about the temple pain especially if you've had pain for a week . Don't just hang around with head pain. It could be absolutely anything and not especially connected to your head either . It's worth getting it checked . I would have my Son or Daughter to the AnE if headaches are bad because it not necessarily your head . Spinal problems can even hurt your head hormones caused by medication can play havoc , it's best seeing a doctor , AnE or night doctor at the hospital if you go after hours just to be in safe side if your having a constant headache x

misswingit profile image
misswingit in reply to jjojay

Hi jjojay, the headaches have been a constant problem since the accident, my GP put me on the topirimate a year or two ago maybe.. (Terrible memory sorry) it was working fine.. Then recently they started getting worse again, this mornings headache was horrid! I will take your advice and get to the doctors ASAP thanks.. I was just a little worried, but then I wonder wether I'm just over thinking it all. I am also on tegretol retard three times a day to stabilise my moods, although I have to admit I mostly take it twice a day with my topirimate, forever forgetting the third. Been on these for almost 3 more years.. I'm now becoming a little worried as to what all this is doing to my body. I'm only 19. Thanks again. Sorry I'm rambling, think I've said what I wanted to! Charlie x

My injury was when I was 14 and many of my symptoms presented themselves as I got older especially into my late teens and early 20s. My injury was to the frontal lobe, I don't know if this helps.

misswingit profile image
misswingit in reply to

Hey AnthonyM I've seen many doctors all telling me I should do my main healing in the first three years, they never said I might get worse! Total shocker! My injury was also to the left frontal lobe, and some other bit I can't remember the name of, little connection things I think. That does help me, thank you, I've felt very alone for years, on recently started reading these sites and only today started posting, progress surely! Thanks again, Charlie x

in reply to misswingit

Hey misswingit, when I saw your post I thought of my own experiences. I found that my speech worsened as I got into my early 20s, I don't know if this is permanent or not, but it can improve temporarily with effort on my part. And you're right, doctors will tell you that the symptoms will become evident immediately after injury, but I had the opposite experience, I make a quick recovery and was walking and talking 1 week after my injury, but over the following years things slowly got worse for me. It's not suprising to get symptoms later in my opinion, since that part of the brain injured is still in development until the early 20s. You're still young, there's a great chance you'll improve, keep faith.

misswingit profile image
misswingit in reply to

Thank you for this, has in a strange way put my mind at rest a little, I've been getting worried that my problems are getting worse or, I'm getting super paranoid, the whole things scaring me to be honest, so thank you very much, I turn 20 this year and don't want to waste my last year as a teen paranoid and depressed! Trying to beat this thanks x

jjojay profile image
jjojay

Hi Charlie , thing is that's what your GP is there for , over worrying as you say,,is normal when your in pain . I would be just the same , its very normal .It's a good idea to get it checked out . Bless you , I do hope this head pain subsides and gives you some relief , x

misswingit profile image
misswingit

Thank you jjojay, never realised how I'd feel better for posting on here.. Should have started years ago.. I'll keep you updated, thanks again xx

cat3 profile image
cat3

You sound so bubbly and lovely, misswingit, and I'm so sorry you've been so scared. Yes, do see your GP and, hopefully, your headaches can be managed better in time.

Really just wanted to say Hello & glad you're going to be around.

cat x

misswingit profile image
misswingit

Thank you cat, I'm booked in for Friday, will let you know what they say. My accident turned my life upside down, still trying to find who I am, but even with my low days I've come far, ive found meanings to life that I try to focus on that I don't think I would have other wise, try to hold on to this. Hope all well. Thank you. Charlie x

misswingit profile image
misswingit

Been told to monitor my headaches and mumbling, if headaches get worse take another of my topirimate, and try not to mumble. If it gets worse go back in a month. Well if only I'd of thought of trying not to mumble sooner. Silly me.

cat3 profile image
cat3

Thought I'd check in...see how you're doing. Glad you saw the doc even though it wasn't very inspiring....still think it's good to have periodic check ups, and the monitoring is useful for planning subsequent treatment.

In the long run I suspect your humour will see you through.......just remember not to mumble !

Hope you're headed for better days, Charlie. cat x

misswingit profile image
misswingit in reply to cat3

Hahaha thanks cat! And you take care xx

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