I'm new here but have spent a considerable amount of time reading the posts - it's reassuring that I'm not alone. I guess I just wanted to post to introduce me (32), my husband (29), and our current day to day struggles.
My husband had a serious accident back in January 2014, and along with some remaining physical difficulties (he broke his back so suffers from this too) - he also suffers from a brain injury. The hospital records suggest " large hemorrhagic contusions of the frontal lobes bilaterally and an occipital fracture". They said it was severe.
He has had all the relevent scans, and has seen a Neurologist, a Neuropsychiatrist, and a Neuropsychologist - both for initial visits in the first year after the accident, and follow ups now 3/12 years on. What has become clear is that he is getting worse.
I work full time, and so does my husband at the moment, but as soon as he gets home he's totally wiped out. I do everything around the house, all the shopping, cooking, cleaning etc. I deal with all the finances, plan any holidays, sort out cars etc. It's pretty draining.
What worries me is that there is no light, he's always tired, irritable, snappy. He gets ideas in his head and obsesses over them, I've had to take away access to his bank account as he impulse spends large amounts of money - but then I feel guilty that I'm controlling him. He can't make decisions about anything and ends up getting himself so worked up he locks himself in the bathroom in tears, he says he can't control what his head does. Sometimes all I want to do is get into bed on my own with a glass of wine and forget about everything, about how much he's changed, but that's not helping anyone as the glass soon turns into more - and its not me with the brain injury is it he's suffering more than I am.
Anyway, that's us. We're both still here, still trying, still struggling.