General Update

[Kirk5w7]

Hi everyone

Just catching up on posts I’ve missed recently.

Those of us that have been on here for a long time seem to be settling in to similar life challenges.

Little or no improvement with reading problems, sound and visual overload, balance issues, temperature control and other daily problems.

I need to rest after getting up and dressed, or showered so that tends to set the tone for the day.

When I get overly frustrated I try to remember there are many of us in the same situation. I will say that things have been worse post Covid. Those lockdowns didn’t help me one bit. I’m now battling weight issues and with winter approaching fast now facing 6 months of trying to stay warm, without being faced with overheating if that makes sense.

I do keep up with general posts but rarely reply these days and feel guilty for that.

Take care everyone.

Janet x

[cat3]

Hi m'love ........ 'trying to stay warm without being faced with overheating if that makes sense' ...oh yes it makes sense !

The whole heap of post-Bi baggage just keeps on giving doesn't it Janet. The balance, the overload, overheating, plus the chaotic emotions 😦!

The dark nights don't help of course and I've an injured knee the size of a cabbage (still waiting for treatment since May 2022, so pretty much housebound with pain & immobility).

So sorry you're floundering too m'love ; wish I had some wise or cheery words but it seems we're pretty much in the same boat right now.

I just keep hoping upon hope for better days.

So I'm setting aside some of that hope for you Janet and a sending a big, serious hug ! 😐

Love always, E. x🌈🍀

[Kirk5w7 in reply to cat3]

How often do we see “struggling to accept the new me”? I don’t think I ever will.

That’s life though, I love the days I feel comfortable in my skin, but then they are often followed with ones that dash your hopes again aren’t they?

All in all, it could be worse.

Thank you for that hope and the hugs come back tenfold.

I am still independently mobile and could come over to visit you, in your home if that would suit. I don’t want to impose but it would be good to see you. I was over in Gatley and Styal Woods two weeks ago, and I go to the BASIC gym in Eccles twice a week.

Take care and look after that knee.

Love

Janet❤️

[cat3 in reply to Kirk5w7]

Thanks m'love. I'll be staying in York for a while as my partner has family up there. He also has a lodge on a woodland site nearby so it'll be a welcome change from my own four walls !

But once I'm finally mobile we must meet up again.

Hope the dreary weather isn't getting you down too much Janet ; I'm not a fan of the dark evenings....🙄

Look after yourself....

E. x

[paxo05]

Hi, nice to see you are still battling on. I get the overheating issue, keeping warm without boiling is a fine line.

Oh and a good one from Cat " bi , the condition that just keeps on giving "

Like you I keep a check on here, do an odd post ( usually is odd as well). Comment know and then.

It's strange how different things are now they are the new norm. I think we settle into whatever life gives us eventually.

All the best , keep plodding on

Pax

[skydivesurvivor]

Hi good to have u back!! All the above?!! Just SMILE to spite it!! Others may think us mad but we know different have a good day

[BaronC]

Hi my walking companion!

'Welcome to my world' is the apt phrase I think. It never gets any easier does it.

Life has become one relentless round of coming to terms with, well, every sodding thing. Mu concentration levels dipped alarmingly after the old knock on the bonce and the march of age ain't helping one bit. I know my speech is being affected too. Aphasia is creeping in and I can feel it coming. I know my words get messed with and occasionally don't appear at all.

Good fun.

I've been tired since 12/12/1994, 06:30 to be precise. I woke from my coma, yawned and I've felt sleepy ever bloody since. Oh, and ill as well. I think I've had a lingering cold now for about five years.

More fun.

Weight issues, ah yes, I know it well. Unfortunately shops don't sell trousers in the size, 'Rotund' They really are missing a trick...

Still, life plods on, I've become a father at 53 years old and need to up my game

I very much hope you are managing to keep smiling through it all I'm sending you my best wishes from us all

[Kirk5w7 in reply to BaronC]

I do keep smiling through.

What I am trying to capture though is that time on our walk when I felt at my best. Is it really 5 years ago?

I find it hard to accept that growing older seems to enhance all those aches and pains and niggles we feel.

I attend the BASIC gym in Eccles twice a week that has kept my muscles working and keeps me mobile, it takes me over an hour to get there, and the same back, on public transport. The exercise is done on mechanically assisted machines so not too strenuous.

I am awaiting an appointment at ENT for my balance but I am not holding my breath.

Apart from that , onward and upward, speak again soon.

Janet x

[Painting-girl]

Hello Janet, good to have an update from you, and sympathy for all the issues. I think I'm doing ok, and then get to compare myself with someone my own age, and realise how much impact fatigue has overall. And how using the laptop still gives me a migraine - those odd moments bring me up short sometimes. But hey, I got to my art group today, and have finished a couple of paintings this week, so shall carry on enjoying the small things. Virtual hug from me x