Newbie - SAH 4 months ago: Hello all, I only joined... - Headway

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Newbie - SAH 4 months ago

Ruminata profile image
19 Replies

Hello all,

I only joined this forum today and have been reading some of your posts.

So here is my introduction.

I had a spontaneous SAH 4 months ago whilst gardening, cue lots of drama/inpatient tests but no aneurysm found.

Because 'I did not even have an aneurysm' and I look normal I almost feel like a fraud with all my symptoms.

(fatigue, headaches, dizziness, memory and concentration issues, anxiety).

I have only just now grudgingly accepted that 4 months since SAH is early days.

I have worked full time in a busy environment and now some days I can't even get out of bed.

I struggle with the uncertainty of how well I can be expected to have recovered by what day 'x'.

Been lost to NHS follow up since discharge from the neurosurgeons so my GP is just chasing this up for me.

So all in all I am a bit muddled up right now.

Thank you for reading.

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Ruminata profile image
Ruminata
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19 Replies
cat3 profile image
cat3

Welcome Ruminata. My SAH was 6 years ago and I imagine I've reached the limitations of recovery by now. But I remember the uncertainty of the early days and the frustration of suddenly struggling with routine activities.

Your dizziness and other symptoms are all par for the brain injury course I'm afraid and, with time, I hope you'll get the hang of all these new issues and start to allow for certain deficits in past abilities. I used to work with wood a great deal but, since the SAH, I have neither the patience nor the dexterity to do intricate stuff ............so the tools lie idle unfortunately.

The fatigue seems to be a universal problem after any type of brain injury and, at the 4 month point, you'll be feeling pretty debilitated. Try to be forgiving and accepting of your condition, and avoid looking back with regret. If you can accept who you are now, any improvements will be a welcome bonus. And I'm sure you'll see some m'dear, albeit slowly/gradually.

Rest as much as you can ; rest/sleep & good diet are the best therapy for brain rehab. Hope to see more of you here on the forum. Cat x

BaronC profile image
BaronC

Hi Ruminata,

Nice to meet you. I'm a brain damage veteran and though I haven't suffered a SAH, I obviously share many of your symptoms and feel your pain. This is certainly the place for you to share your story and find the help and advice you need. Feel free to ask anything you like and somebody will be along to chat

Best wishes,

Andy

moo196 profile image
moo196

Welcome!

Havel you had any contact with the community neuro rehab team? I hadn't even heard of them, but my sister insisted there must be something..... And once referred they were fairly fast in responding and very very helpful. Give them a call tomorrow...

Otherwise take care of yourself and be kind to yourself. Don't try to rush things. 4vmonths is a long time to you now, but your brain is healing in it's own time.

CH56Twin profile image
CH56Twin

Hello Ruminata nice to meet you. I can only agree with all of the above always wise words from our members. 2 years on from my own injury every day is a recovery. I found that improvements in my brain activities were quite quick from my initial illness and then slowed to a kind of plateau. This was over a period of 12 - 18 months. What I have discovered is that I am more prone to stress and my cognitive abilities are very much affected by my levels of stress. The lesson I have learned from this is to not be too hard on myself and to keep my expectations to an acceptable and manageable level. I would like to think that I am moving forward but in truth it is only time that is a true measurement of this. I did not understand this idea in my early days of recovery, which did lead to some uncomfortable and negative feelings. But hey this is all part of the process and journey.

If I am really honest I still have not come to terms with my newly acquired brain functioning disabilities and in part this is a good thing. Why? Because I have not given up. I am finding that I am having to hone the creative art of patience. Will I ever make a full recovery? It is very doubtful that I will but it doesn't stop me from hoping or at the very least hoping for further improvement.

Good luck with your personal journey.

Clare x

sealiphone profile image
sealiphone

Your being lost to the system, gets you into our club as it's such a common experience, welcome!

I'm reassured that your GP is trying to get you assessed, however in many areas the waiting time for Neurological Service can be very long.

In the meantime I'd suggest going to your local Headway group as you'll meet people who've gone through the assessment process and you'll also be able to talk with people with similar symptoms.

Good luck

Ruminata profile image
Ruminata

Thank you all for your kind words of welcome to this forum.

I already have a question:

My employer (NHS) has been good / hands off so far and left me recovering in peace in the care of my GP.

I met informally with one of my supportive senior colleagues and I am afraid I must have come across as an emotional wreck.

She asked me if I would like to be referred to occupational health at this time in case they can access extra services / speed up things for me.

I said 'no' because I did not want any extra hassle/ forms to fill in/ face my new reality.

Now I think it was maybe wrong to decline this offer of help.

I do find it hard to make my mind up.

Is it better to be referred/ assessed early ?

sealiphone profile image
sealiphone in reply to Ruminata

In my experience reasonable adjustments can make the difference between success or failure when returning to work.

Also if you decline to take up this right it could be detrimental and reduce the chance of success at an Employment Tribunal in the worst case scenario.

Your employer is trying to ensure they comply with the Equality Act 2010.

You can find information for employees and employers on the Equality and Human Right Commission website. They also offer fantastic advice on their telephone advice service.

Perhaps the most important thing is are you fit to work it's only been 4 months and it's generally accepted that it takes a minimum of 12 months for plasticity to repair the damage caused by a TBI.

Neurological Service are best placed to advise on this matter, returning to work too early can be a recipe for disaster.

Elenor3 profile image
Elenor3 in reply to Ruminata

I think you have made the right decision for now. OH may be able to help, but if you’re not quite ready to go into the office just yet, you probably don’t need return to work / fitness for work assessments to worry about . As already suggested - contact Headway and try to access your community neuro team care if there’s one in your area :)

moo196 profile image
moo196

I'd accept any offers of help at this stage. You can always decline later.

My main sources of support were Community neuro rehab team ( who then suggested psychologist - who I met a few times but then kicked into touch ) and Headway ( who sent someone out to see me at home for several visits) .

I would think most of us were emotional wrecks at your stage of recovery - part of the territory I'm afraid.

Hope you find the people to help you. :-)

Ruminata profile image
Ruminata in reply to moo196

Thank you.

I guess I am at that point where I have to learn that asking for/accepting help is not a sign of some sort of 'failure' but normal.

sealiphone profile image
sealiphone in reply to Ruminata

I think it's important to forget failure in the context of your pre TBI self.

It's essential that you make your family and friends understand you are having symptoms that sometimes go against common sense.

This is one of the biggest mistakes a TBI can make, being too positive, otherwise others may think you should be coping better and they won't make the appropriate allowances.

sealiphone profile image
sealiphone

Another word of warning my employer engaged a Work Based Psychologist to assess if I had any symptoms and my fitness to do my work, their report and recommendations were totally wrong

moo196 profile image
moo196 in reply to sealiphone

It's better in my opinion to have assessments independently from anything to do with work.

sealiphone profile image
sealiphone in reply to moo196

Not if they're totally wrong and cause someone to lose their job, this situation would undermine any legal claim if dismissal occurred.

moo196 profile image
moo196 in reply to sealiphone

But work based/commissioned reports will be biased toward the employer.

My GP and neuro rehab team were the best people to report on me without that bias

sealiphone profile image
sealiphone in reply to moo196

That could be a danger but I've seen them commissioned by unions Disability Employment Advisers and employees.

The problem is a Psychologist isn't competent to make such an assessment.

To be clear the only report I'd rely upon would come from a Neuropsychologist and be wary trusting your GP, unless they have specialist knowledge.

In my case the Psychologist was independent and bound by professional standards and I was involved in engaging them.

Of course at the time I didn't have my present knowledge about TBI and I hadn't done any TBI employment cases.

Some of the horror stories I've come across since then would give pause for thought for anyone regardless of their position in a company.

Ruminata profile image
Ruminata

Thank you all for your helpful comments, much appreciated.

sealiphone profile image
sealiphone in reply to Ruminata

Great Headway information regarding returning to work here:

healthunlocked.com/api/redi...

Elenor3 profile image
Elenor3

Welcome :) you’ve come to the right place . People here understand and its a great source of information and company when you suffer from a hidden illness. Good luck with your pursuit of follow up care.

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