Eye problems

[Notts22]

Hello everyone, I had a brain hemorrhage September 2021. I have been home about a year. Does anyone else have eye problems since brain injury. In my case the sight has changed alot. I had horizontal double vision before the bleed and by having prisms in my glasses my sight was fine. However after the bleed my double vision is horizontal and vertical, the vertical vision is more of a problem the optitioner said he can't treat the vertical problems, so must wear a patch, this causes problems focusing for long periods.The Neurology specialist has written to eye specialist at the hospital that was about 7 months ago, but I still have not received a date for an appointment. I have phoned the eye specialist secretary who has said there is a long waiting list, because appointments were stopped because of Covid.

Has anyone else had eye problems because of a bleed?

I really enjoy reading comments and experiences on this site, I think it is a great site I have replied to other users who have queries.

The site reassures you that you are not the only one going through this.

[Cybergirl]

God bless you Notts22. That must be an utter nightmmare to live with! Sending you lots of love and prayers for a comfortable Christmas and that all dreams come true.

[Notts22 in reply to Cybergirl]

Thank you so much CybergirlVery kind comments x these sort of problems make you feel very low. But kind comments like yours is such a lift to my mood

[skydivesurvivor]

tbi left me with limited visual field on my right, frustrating, walk into things, graze arm leg frequently as a result a challenge but at least am still alive!! Merry Christmas 🎅

[Notts22 in reply to skydivesurvivor]

Hi SkydivesurvivorI am lucky my husband helps me alot. If we are out and I say I can't see where I am, he will say walk to left or right, so I don't fall over or bump into anything. As you say we are lucky to be still alive. My husband was told when he was called into the hospital that I was not expected to live.

Merry Christmas x

[Writeronstack]

Hi Notts22I've had eye problems before the mild TBI - but after it, there appears to be a bleed into the right eye.

A team at Oxford Eye Hospital (a part of the John Radcliffe) are treating it.

Improvements after injections into the eyeball. Review after the third, which is in January.

You might ask for a referral. Don't know where you are, so may not be practical. I'm not nearby either, but happen to have landed on my feet, when my optometrist knew exactly where to refer.

Wish you a happy Christmas.

Your afflictions sound worse than mine. We're both lucky to have supportive partners.

Take care, as you go. I've just had a day of brain fog. . . Terrifying. Could see that what was happening was unusual, but couldn't work out exactly why. Slept a bit better last night. Today a little less acute.

Day by day. . . Don't let it get you down. It is stepped, but there are minor improvements. They do add up.

Xx

[Notts22 in reply to Writeronstack]

Hi writeronstackMany thanks for your reply. You sound as though you are going through a difficult time. I hope things get easier.

Yes having a supportive partner is vital.

I shall try to contact the eye specialist secretary after Christmas hopefully better news.

Hope you and your family have a brilliant Christmas

[Kathykathy]

I had sah 7 years ago and had alot of eye problems . Tersons syndrome following haemorrhage appears to have no treatment. Cataracts following vitrectomies so 4 surgeries. Glasses with prisms too. Various distortions. So you not alone but no panacea.

[Notts22 in reply to Kathykathy]

Hello KathykathyYou sound as though you have been through a bad time I hope you are feeling a little better.

I had cataracts done before had the bleed.

I hope you have great Christmas

[Symundo]

Hi Notts,

Brain swelling-Due-to-blood-clot-changed-my-eyes.

Apologies-it-won’t-let-me-do-a-space.