Hi, does anyone on here have or has had a pineal gland cyst? Mine was picked up on an mri a month ago and it's 15.9mm and causing me real problems. If I don't take 600mg of ibuprofen every 4 hours then I just can't function as the pain is like nothing I've felt before. It started at the end of February this year when if I sneezed, coughed, bent over it was really painful in the back of my head but now it's all the time regardless of what I'm doing. My vision has been getting progressively worse but my prescription hasn't changed and I have a really bad pain behind my left eye when I look up and it seems to distort my vision in that eye. I've got another mri booked for the 18th of this month and then a neurologist appointment in November and one in December. I have a feeling that the neurologists will want to do the whole watch and wait thing as that's all that seems to be done in the UK. Has anyone experienced symptoms with their cysts or better still had surgery? TIA xx
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