Bladder Inconvenience

[Kee10]

Has anyone had any issues with their bladder since suffering a TBI? Just wondering whether it is linked? I've done some research and seen that neurological bladder is often a problem? I've had bladder issues for as long as I remember since my TBI, with age/children it has become much worse. Just wanted to know if anyone else experienced anything similar?

[Kirk5w7]

Absolutely

[Pairofboots]

Yep, no1 and no2, oh the joy we experience?

[Kee10 in reply to Pairofboots]

Same! Have you been tested and have they said that's it is actually due to that then??

[Pairofboots in reply to Kee10]

I saw a neurologist once who declared it was nothing to do with my head, when I said I didn't have the problem before, they just blanked me. There has never been any other investigations, although it occasionally gets a mention in passing in various reports, usually with something to the fact it hasn't been formally investigated, as if I imagine it.

[Plenty in reply to Kee10]

I’ve seen a specialist since my TBI and yes it is caused by the brain injury.

After several accidents (in public) I was told it was fight or flight caused by anxiety.

Eventually I got to see a doctor who specialises in that department and they said it’s not uncommon with brain injuries to suffer from it.

Your GP should be able to refer you to a NHS department that can help.

[ftt1960 in reply to Plenty]

I have suffered from urgency incontinence since my TBI and the situation is worse since I’ve developed hydrocephalus. All literature talks about a link between the two and my neuro surgeon agreed that there is a link. I have not yet spoken to my GP about the situation but am dealing with the situation that no amount of pelvic floor exercises improves. There are so many good products available these days. Very embarrassing when you get caught out unprotected.

[Skulls]

Hi Kee,

Yes, though, being a male, the pipe work etc is different. I lost the ability to urinate at all causing major discomfort until they inserted a catheter. Eventually I was treated with a drug called tamulosin that relaxes the bladder and prostate muscles to allow the flow. After incidents of urinary incontinence on the stairs en route to the WC, I now use urine bottles to prevent accidents.

[Suebedoo]

because our autonomic system is affected, we can have all sorts of seemingly unrelated issues. This article explains it better than I could

cognitivefxusa.com/blog/pos...

[Kee10 in reply to Suebedoo]

Thank you so much x

[skydivesurvivor]

spent a month wearing a casita whilst in intensive care, 22 years on despite taking soluphen have to wear tens lady daily!! Small cost for being alive!!

[sashaming1]

Yes.

[Hakuna_Matata_]

Yes I have a neurogenic bladder too. I was prescribed oxybutynin to help relax the bladder but due to my spinal injury coupled with my TBI my bladder is in retention so these sorts of meds are contraindicated in my particular case. I have to catheterise 4 times daily so I can empty my bladder to avoid UTIs which also alleviates the amount of times that I need to go. I would definitely recommend speaking to your GP about it and see if they can refer you to a urologist.

[skydivesurvivor]

result of wearing a cafetta unfortunately! Doctor can prescribe tablets, urethra has been stretched. Horrible reminder of intensive care!! Tena ladies are wonderful tool to aid too. Good luck!