UPDATE PARTNERS TBI

[Ieasha1990]

UPDATE......

Hello everybody this is my previous post from last week followed by an update.

Hello everyone it is my first time posting here. Im not looking for medical advice as I know that cant be given here Just some hope from people who may have been through similar. Just over 6 weeks ago a loved one was assaulted he suffered a big bleed and ended up having to have a decompression craniectomy on the left hand side of his head as they couldn't control the swelling in the brain plus had to remove a blood clot . His glasgow score was 3 when he went into ICU and it now currently stands at 4. He was put in an induced coma for 4 days then sedation was taken away and he has been in a coma himself since which has lasted 6 weeks so far. All i keep hearing from the doctors is the longer he's in a coma the worse the outcome will be if he is to even wake up at all and its just so awful watching him every day as he is. He was ventilated for 4 days but has been able to breath on his own since then so now has a tracheotomy . If you touch his face he moves his head about and he opens and closes his mouth ( if you touch near that area) He also coughs and yawns and has hiccups . His eyes are currently closed but to me it looks like hes blinking underneath as his eyelids twitch every few seconds. He also lets out a big sigh every so often like he's fed up! The nurse took his blood the other day he didn't pull away from the pain but frowned and moved his head about when the needle went in his arm but the doctors don't seem very interested when we tell then about the little movements and things we see all they keep saying is by the MRI he has widespread damage and that he will probably need to be looked after in a care home and they keep asking us if this is what he would want to live like. He had another MRI recently and they have found another bleed which they are treating him for but have said it will most likely cause more damage . I just feel so lost and hopeless right now and hope is all I have left

Update...

So since my last post my loved one is still doing all the things i said in my last post but still not opened his eyes. Its now 7 weeks and 3 days he has been in a coma. The doctors did another MRI and he still has a bleed on his right hand side of his brain which they are treating with medication he is also showing signs of having a stroke so the doctors have basically said there is not much hope and keep talking about palliative care . After me and all the family talking to them and convincing them to give him more time they are now in the process of discharging him to a specialist nursing home. I feel gutted and any hope i had seems to be going by what the doctors are saying and just the length of his come. He has also dropped from a 4 to a 3 on the glasgow coma scale. I just needed somewhere to vent ...im so stressed

[Marnie22]

I will say a prayer for you and your family. I hope that things could improve. It's very hard to know but I am thinking of you. 🌸

[cat3]

I'm so sorry hearing of your partner's poor prognosis Leasha. I know you'll be existing in a world of fear and, sadly, no one can do or say anything to change that.

We're complete beginners in the fall-out from brain injury and when a situation deteriorates the natural instinct is panic...………. but subconsciously we're all the while developing coping strategies.

All grieving begins with heartache but, imperceptibly, we enter a process of evolving emotions which, although painful, usually lead us slowly to a more bearable headspace, if not from acceptance then from sheer emotional exhaustion.

You'll be in the throes of shock and disbelief with so much negative input from the doctors, but try not to speculate m'love and take your days one at a time. It's too early to be certain of the long term, and your poor brain needs time to assimilate the events of the past 6 weeks and probably needs some respite if you're to stay strong.

It's going to be a wait-and- see scenario for you Leasha and, if you're struggling badly, then maybe some temporary anti anxiety meds from your GP would help you cope.

Sending love and hugs and all best wishes to you both. We're always here... Cat x

[Froggiefrog]

Thinking of you both kx

[leila65]

My heart goes out to you all.. And echo all Cat so eloquently explains.. Thinking of you.. Will pray for you all much love x Ley

[leila65]

My heart goes out to you all.. And echo all Cat so eloquently explains.. Thinking of you.. Will pray for you all much love x Ley

[FlowerPower62]

Desperately sorry to hear that. Remember, while there's life, there's hope. Keeping everything crossed that he will come out of the coma. Stay strong. Xxx