Has anyone experienced Hydrocephalus months after a concussion?

[Mogreen1]

I had a concussion Aug 2020. In June 2021? I experienced pressure headaches and had a CT in Aug 2021 that showed enlarged ventricles with spinal fluid build up, I’m getting more tests done. Wondered if the hydro would go away if the injured area was treated. Wanting to avoid the shunt if possible. Thanks.

[textile163]

I developed hydrocephalus in the first year after my sah- I could barely walk and sensation down my left side was all to pot. I had a shunt and it was a miracle cure! I can walk again, sensation fine. What are your reservations on having one?

[Mogreen1 in reply to textile163]

I’ve read mixed reviews on Stuffthat Works website and others. I appreciate your feedback. Honestly, worrying about the pressure headaches is stressful, which makes them worse. I have PET scan next week, then neurologist appt following week.

[FlowerPower62]

My husband had one 2 months after his TBI. He was still in hospital at the time, in rehab, and I noticed he was acting a bit strangely. I told the doctor, and after examining him they sent him back to the original hospital where he had a shunt fitted asap. I was told it could have been really serious, even fatal if it hadn't been done. Nearly 3 years later he is fine, had no trouble with it. Apparently, the operation is their " bread and butter", as one doctor put it to me, it's so common and straightforward. So I wouldn't worry about it. X

[greg1978uc]

My experience is unique in that I've not encountered anybody with a similar story...so I might be an anomaly. I've had this since 1985, post-concussion. The shunt has not worked and the surgeons I've seen and spoken too attribute this as "possibly" because I was not shunted until 1991. It's a long story, but the headline is bad doctors. I was tapped as diagnosis, then neurologist decided people are born with it or pregnant women. So I was sent to find a "cause" which was never found, then it was migraines, then I made it up to skip school, then back to the tap and finally 2 years of diuretics + taps, while seeing a list of surgeons who would not help.

I was a kid, so my memory is imperfect, but combined with records and my mom's memory, it was not bad at the start. Very cyclical, where I might have one bad week every month...but every year got worse. I certainly can't give you an answer, but if I could time travel, I would not wait, not stop until I found a surgeon, not messed around with very ineffectual non-surgical "treatments". I believe it would have changed my life. I should also note that no fewer that 4 neurologists "suggested" it might just go away. I'd hit puberty, I'd exit puberty, they'd move the goal line...and maybe it was possible, but I don't believe it. I've looked periodically for research on how post-concussion hydrocephalus is different, if it behaves uniquely or if there's new treatment approaches different than congenital or the pregnant woman, but I haven't found it.

Again, just my experience but had it turned out I did not need the shunt, I could have had one more surgery to plug it and be done...but since I did need it and did not receive it, it was 37 surgeries and at the end, it did not work, while surgeons are not interested and most doctors are simply reacting to how the symptoms shift and worsen. I really would not wait and see.