Still struggling after 2 years 10 months PCS

[Marc787]

Hello everyone,

The process of healing post PCS. Has been tuff and still challenging. My first year dealing with the all the symptoms was very painful. I had to quit my full-time job get a part-time job. The beginning of this year I got a part-time casual job, but getting my 2nd job kinda made my healing, symptoms comeback. Right now I'm dealing with more constant headaches, dizziness, eye strains, tinnitus, anxiety, agoraphobia. I wish I could just not work and just rest and heal, but thats never going to happen because I have to bring in some kind financial support to survive. I can't leave my 2 jobs. I'm doing some vestibular exercises. Some advice would be helpful. I just want my symptoms to subside

[Pairofboots]

Hi Marc, sorry to hear you have had a struggle. Just wondering how much support you have? Have you received a neuro rehab service to help support you? Have you made contact with with Headway via their helpline, contact details are pinned to this page? They can help regarding PCS, and accessing benefits that may help you financially.

Also speak to friends and family that you trust about how difficult things have been. We are great at not saying. Often people don't realise the problems we have, and maybe only too happy to support us if we explain.

I know when I first had to apply for benefits, I thought they were only for disabled people, as time went on, I realised I was disabled. It took a big swallow in pride.

Best wishes 🍀

[Marc787 in reply to Pairofboots]

My first 6 months I got free vestibular therapy at a facility. I learn all the different exercises. I went to a psychologist for 1 year. Thank you.

[Leaf100]

Hi Marc.

Sounds like you need some support and professional advice.

You are in the US so you may want to start with brainline. There are people from all over on this site, though I think most are in the UK where Headway is available.

brainline.org/resource/brai...

There will be some group more local to you who will know about local resources and which docs etc are helpful, therapies, etc.. they may also have various programs to help you learn to cope and give yourself the best shot at recovery.

You likely have what is called a mild TBI as opposed to a TBI - the symptoms can be simlar and in some cases people with mTBI have worse symptoms than those with TBI.. it is a medical distinction that doesnf mean what ir seems to mean to regular people.

One simple thing to do is take breaks for 10 or 15 minutes throughout the day, where you are somewhere quiet as possible and dark - literally do nothing - no playing with your phone or listening to music. Your goal is to give your brain a rest. (Even spending 5 minutes in the restroom with the door locked and the lights out can help, if you are at work and have to be mindful of the optics. Try to rest before your brain kicks off, if you can.

Best of luck, keep us posted.

Leaf

[Marc787]

Thank you

[Butterfly28]

Hi MarcJuggling 2 jobs and post concussion syndrome must be very difficult. Are either of your employers aware of your situation and would they be prepared to accommodate short rest breaks in the workplace to help you through the day. Just a thought. Also make sure you are regularly having a drink of water while at work if you can.

Good luck