Well finally got go ahead for treatment last year only for Covid to rear its head.
Suprise treatment cancelled, no fault on NHS.
Finally got appointment in july to see consultant and arrange for treatment to start. This involved bathing in solution.....errr cant use baths. Not to worry wife volunteered to assist me.
Then go for second consultation to book the dates...still no problem with assisted bath.
Today turn up for treatment. Must admit took a bit of calming and getting myself prepared. Only to be told no you cant be assisted so no treatment.
Then told I can take a course of tablets instead of bathing. Oh and are you ok with flashing lights. Errr I'm epileptic..so not great.
Oh well you should be ok.Dont you love the NHS.
Not looking forward to treatment on Friday, but hey what can go wrong.
Pax
Written by
paxo05
To view profiles and participate in discussions please or .
All sounds quite mysterious ! I hope you'll navigate your way through any treatment hurdles without undue stress or after effects. I can't imagine taking baths these days (must be 30 years since I've been submerged) ; I can be showered with hair washed in the time it takes to fill the bath !
Hope all goes well on Friday Pax despite the flashing lights .......Aaaggh 😣
Thanks Cat, I to no longer bathe as such. It's ok I do shower as we have a wet room.
I do like a bath but unfortunately in the past have fallen trying to get in or out.
It's not so mysterious as if had a skin condition for the last 6 to 7 years. No one seems to no how it came about , it's been a battle as its non life threatening or contagious. Just unsightly and impacts on what I feel comfortable doing.
I know it wasnt exactly bi related but need to vent somewhere and here is a a supportive place to do this.
Not really looking forward to Friday but will see what it brings.
Ah I see ; thanks for clarifying. Well after all those years I hope this proves to be the remedy. Hope it's not nearly as unpleasant as you believe and I'll expect a full update after the event. Good luck Pax ! x
Thanks Cat,I think it got to me about another delay. They are still checking some new tablets I need to take to see if they conflict with present meds.
I was ready for the hopefully end to the battle but seems not quite there yet.
Apparently it has a side effect of getting a tan so not all bad news .
Hi pax, don't really understand the to treatment you are having, or what it is for, and flashing lights???
I hope that whatever the treatment is aimed at treating, actually has a purpose, and the end goal is worth the angst. 🍀
Good luck for your treatment Pax. Interesting about your unknown skin condition. Similar thing happened to me (about 20 years ago). I got angry red blotches all over my arms and legs, underneath the skin. It was unsightly but other than that caused no problems. The doctor said it was as rare as hens’ teeth and top dermatologist at hospital didn’t know what it was either. I went to a retired GP who practiced alternative medicine, who told me not to worry that it was probably a simple fungal infection and/or allergy to my mercury fillings. I got the fillings removed- using a rubber dam to lessen exposure to the mercury- and strangely within a few days the rash lightened and then disappeared altogether. Still don’t know whether it was a coincidence or whether it was the mercury fillings causing the rash. I had been under stress prior to that and think the mental stress may have manifested physically.
It's the same here. I get no irritation from them . They form raised red circles starting from small red patches. Problem is they grow to the size of a side plate and are very numerous.
It is mainly others reaction to them as I admit they are unsightly and I have lost count of the times i explain it isn't ring worm are any contagious condition.
Have tried every cream and like you have had to had fillings replaced but nothing has worked. I have had several diagnosis and several biopsies. All they can tell me is it is harmless just doesn't look nice.
I thought they wouldnt bother me but the reactions of others is if I'm honest.
They keep telling me there are treatments that will stop more coming and may lighten the existing ones. They just keep delaying starting it. I know they need to be certain but to get to the stage of actually starting treatment then pulling it as I literally start got to me a little.
It seems I am back to visit more consultants so I am sort of back to the beginning.
Pax
That sounds similar to what I had - they were numerous - covering most of skin on arms and legs but mine weren’t raised and appeared to be under the skin and very red looking. I was very self conscious about them. Sorry that having your fillings replaced with I assume white ones? didn’t help as I think that is what worked for me. I was also told to avoid fungus type foods like mushrooms and eat a healthy diet, which I did anyway! I hope you can get help with this Pax and that someone will have treatment for you to clear it once and for all. Good luck 🤞
Yea the filling replacement wasnt fun, but it was only a couple thankfully. I am getting more self conscious as mre appear. They initially linked it to diabetes which I have since developed.
I have altered my diet to a more healthier diet but they think the diabetes is linked to my bi , petruitory gland ( not sure on spelling).
I asked if it could be connected and now they say they doubt the connection to it or my diabetes . So I give up and just leave it in their hands.
I just wish they would stop giving me the same creams, that dont seem to work, and let me start on other treatments they keep promising.
They seem to forget the impact of watching them grow and spread can be rather disarming.
Sorry if I come across as cocky. but the NHS have been brilliant t me - My last operation, during the Covid break, saw my consultant about having a knee replacement & 3 weeks later I have a new knee & it's fantastic.
I have many more great stories about the NHS & I've been in hospital ...... a lot, but unfortunately not for my memory issues so can't think of any off the top of my head, apart from the most recent one.
Saying that, I have however had a hip replacement that lasted near on 25 years, my left leg rebuilt, never had a problem (Oh apart from the knee for a while after 27 years. A broken back (Ok, a fractured bone in my back, but I do like t make it dramatic), fixed, no complications at all, my pelvis restructured and more.....
Not only that U get t ask the nurses for tea or toast (sometimes even both) & they bring it to you within minutes (assuming they're not busy, obviously). It's like a hotel paid for by the government (without a swimming pool or a gym - like a travel lodge ;o)
& if U ask for a bed bath, straight away, no messin, no ifs or buts ' no chance U dirty old perv ' ;o)
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
LABEL ME 
What can the NhS offer... nothing but lies 
A move.....but maybe in the wrong direction!!
