visIits cancelled again: hi all got letter y/day... - Headway

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visIits cancelled again

Dogsabighelp profile image
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hi all got letter y/day saying visits cancelled for further week due to the ping pong thinghy.well it is what it is,gives me the chance to sort out all else and get as much info about dols situation as i can.ive written letter outlining the major issues of situation at p.o.w camp.i know my son would know im doing all i can.i have addressed the letter for the attention of the care centre director even though one of the more serious issues is concerning him.i figure this way he has no rock to crawl under/no place to hide?im sort of getting more of angle on the situation..son should have gone from acute hospital care to a specialised assessment unit followed by a care centre that meets his requirements.instead,he has gone the opposite route.this is of course due to covid situation.has his rehab been compromised because of this?i think so..sometimes i feel an overwhelming sense of burden/frustration/anger.mostly i feel guilt that i never said something sooner.but i have the sense to realise these things were happening anyway and probably have on many occasions.i know i have to speak out in order for it to not happen again.im scared for next visit,because my complaints will have been recieved,ive told them i want to see full property of sons and i want him awake,dressed in his own clothes.if i dont find this to be the case im afraid of my reaction...apart from that im ok really.i keep busy all day i eat food.socks is still precious about where he goes for his walks,he has got 2 new pals bradley and poppy.ive had to stop the "hide and seek" game he really doesnt like it!when he finds me he very happy smiling then he starts shouting at me,as if to say "how old are you..grow up!"xxx

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Dogsabighelp profile image
Dogsabighelp
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3 Replies
cat3 profile image
cat3

When we're faced with a new crisis or emergency situation there's often a whole learning process to take on. Learning all the ins & outs of our loved ones health issues, treatments, complications etc together with the whole health system rigmarole is a full time commitment.

It's easy to blame ourselves for not seeing or doing something sooner but, as we know, hindsight is a wonderful thing and you've done everything humanly possible D !

Poor Sox ; he obviously doesn't do suspense ! I'm sure he's spoiled though...

Take care D. Love Cat xx

Pairofboots profile image
Pairofboots

Hi, it sounds like despite all the stress, you have got a measure of the battle lines. You are doing your very best. If they haven't rectified the errors of their ways, you will take a deep breath, and address the issue as a mother should.

Glad Socks is still training you 😉,

Best wishes

Ian 🍀

ored13 profile image
ored13

Good for you! If you have asked for something and it's not been done it's just not ok. As you may know we were that family who was constantly kicking up a stink about something. When it came to visits being back on, I was the 1st one through the door on the 1st day. Unintentional but still happened. I also had to walk through the morning staff meeting. It was extremely uncomfortable. But also I realised quite quickly that nice me was gone forever. I couldn't give 2 hoots about any of those people and what they thought. I didn't know them apart from a few who had gone out of their way to make contact and share what was happening with my husband while in residence. I could honestly have spat on a couple of them and then some...sorry I know this sounds awful. What I'm saying is that they get to go home at the end of shift. They don't have to worry about how your loved one is being treated, how he is feeling and thinking, what he would like and whether he is being treated with consideration or dignity.

Tangent... apologies

But this sticks in my throat.

❤️

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