very upset/confused

[Dogsabighelp]

dont think ive stopped crying in 24 hours.spent all this time setting up new email/facebook profile etc.so i arrange a facetime before last nights match.so here he is,my son giving me two fingers,middle finger,knocking ipad over(several times).care giver telling him to calm down 10 minutes of complete agg and hatred.i rang unit and was told he was fine,but obviously i was stunned and upset.im not sure how to deal with this?not going to lie,im feeling like i want to remove myself from this situation but i also want to go and grab him shake him say to him im done with the bs of your situation.how dare you give me the finger?you put yourself in this place.its a rant im sorry soo upset

[cat3]

Oh D, your sanity has been tested to the limit throughout these past months ; I'm not surprised you're close to the edge. This reminds me of when your child goes missing and your worry is off the scale.

All you want to do is find them and hug them ---'til they wander in with a cheeky remark and there's nowhere for your emotions to go ! Except this is long term and the seriousness is proven.

Rant away m'love ; anything to release some of that hurt which comes from the bewildering uncertainty of a brain injury and a loved one's inappropriate behaviour. The feeling of unfairness and loss of control will be overwhelming.

I know you know those aren't the actions of Sean but the frustrations and confusion of his poorly brain. Look after yourself D. We're here to listen, whatever you're feeling. Cat x

[Nanapal]

Hi D, sorry you are feeling so upset. Please don’t take Sean’s actions to heart - he really doesn’t mean them - I have been on the receiving end of some very choice words which came out of no where on one afternoons visit. I remember they brought tears to my eyes as he has never swore at me like that before. If a swear word ever slipped out in my presence ( no swearing in front of mam!) he would always coyly say “sorry mam”. Which confirmed to be he wasn’t aware of what he was saying - this is the brain injury talking. He also on quite a regular basis swears at the nursing staff when they turn/splint his legs - again quite choice words, things he might say with his mates but not in front of nursing staff especially female ones. When we were told this quite early on we apologised on his behalf but staff just said it’s par for the course with TBI patients & they take no notice. Chin up D. x

Still on tender hooks here waiting for CCG panel’s decision- looks like we will have to wait until tmrow to find out now as time is getting on. x Nanapal

[Skallagrigg]

My son is very similar, it's heartbreaking for us as parents, it really is, stay strong