I had the first Covid vaccine just two months ago, and the following day I lost all of my sense of balance I collapsed and couldn’t get up, I delirious, I was taken back to my flat put on my where I stayed semi conscious for 48 hours, and I did not go back for the second one.
Covid Vaccine : I had the first Covid vaccine just... - Headway
Covid Vaccine
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Ian1956
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Hi, I would think that what you experienced was separated to receiving the vaccine, but it needs investigation. Talk to your GP regarding what you experienced.
Regarding the vaccine, again discuss this with your GP, it is important to receive both injections to receive maximum protection. The risks associated with Covid are far worse than the vaccine.
I did speak to my GP she said it’s just side effects of the vaccine but they never warned me about that sort of side effect it was terrible. Regards Ian
Collapse would be a side effect if it had occurred within 30 - 60 minutes post vaccine, but hours/day later very unlikely?
Fever, flu for 48hrs? Possible with AZ vaccine.
To be honest I’m not fully over it yet and generally I’m tired most of the day, I just got no will or motivation in anything, but with everything else mounting it looks so bleak in general. Regards Ian
Yes you might be right matey will never know, sorry about late reply just having a short rest as I was none to good in the night. Regards Ian
How do you know so much about the medical aspects of the vaccine related to tbi's? I'm very curious, as I'd like to know where I can find out more about what you're talking about. This would be very valuable information to share with this group. Please share your references. Thank you.
Well sca, funny you should mention that. Perhaps 25yrs service as a RN, prior to retiring because I had a brain injury. Over Christmas/New Year 2020/21, I completed 40hrs mandatory training in the hopes of becoming a vaccinator which covered the Pfizer and the AZ vaccines in great detail, in all the elements I scored above 95%, the pass mark being 80%. The only way to access the references would be to consult the Green Book which covers the use of all vaccines. I hope this is a sufficient answer to your curiosity.
And now I know. Good for you. Thanks for sharing that. I see so many in different groups talking about it, not knowing what they are basing their opinions on. Nice to see some credibility.
I know what you mean sca, I call them 'Sun Reader's' not wanting to insult anyone's choice of newspaper, but it does seem to be people who heard something from him/her down the road, who heard it from there great aunt Ethel, who read it in.......
I often bite my tongue, well I would bite my tongue if I still had teeth.
Oh so you was a service man that means good man to me, some of these youngsters should be put through their paces. Sorry about you injury I bet that took some coping with, all brain injuries in my book are the worst because they can go either as the brain controls everything, hope you’ve come out of it ok in any case that’s the main thing. Well today me and the drs surgery are going head on with a row today, Friday they left me on hold for 50 minutes then cut me off at around 6pm, they won’t put the phone down today as they are only round the corner and i will go straight up their and they will do what the normally do when they see me run in the back office when I’m on the war path. Regards Ian
To be truthful I know absolutely nothing only my experience of that one jab but saying that I live on the 19th floor in a block of flats and most if not all have said similar issues most not going back for the second as the results of the first one and it’s issues with them have put them off. But to be honest I don’t think they’ve had long enough time to test it thoroughly, buts that’s only my opinion. Regards Ian
I appreciate your concerns, 19th floor is had enough. But it is important to have both injections (hate the term 'jab'). I hope you do get to a Dr by hook or by crook, voice your concerns. Is there someone you trust to go with you for the second injection, and could possibly drop in on you for a couple of days just for peace of mind.
You can report what happened via the yellow card system, it's online. I still think the main event was possibly unrelated to the vaccine and needs some investigation.
Best foot forward, unto battle, good luck 🍀
Best regards
Ian
Well regarding the drs I’m on the phone waiting now, regarding the vaccine I’m contacting them today on 119 to arrange the second one. Regards Ian
Never heard of the yellow card issue. Regards Ian
The yellow card system is away that a professional or a patient can report adverse reactions they believe to be as a result of any medication that they take or is administered.
It used to be a paper card in the Bible of medicine's The British National Formulary (BNF), so only medics could report, but it is now online as is the BNF, you can get a free copy of the BNF via your mobile phone or tablet. These are updated twice a year. The paper version can be bought, but the price would give you a heart attack.
I think the yellow card system has only gone online because of covid. You will find it under either the NHS or.gov, I'll have a look and let you know.
Yes I was right, the NHS site is possibly the easiest route, there is a dedicated yellow card reporting regarding Covid vaccines, in addition to the general reporting.
Spoke to the drs sorted that, Covid vaccine this Friday 14.30 so that sorted, so I’m going to make a tea now. Regards Ian
I'm sorry you feel like this Ian. It sounds like you have experienced a medical event, I'd query that you may have had a bug, covid, flu, or the like, this has knocked the stuffing out of you. What ever it is/was needs to be looked at. Tell your GP exactly how you are feeling. At least keep in touch with this group. You need some help to shake these feelings.
Best wishes Boots or Ian, I answer to most name's including profanities, take care.
Many thanks for you reply sorry about late reply but bad nights rest so having few hours now and yes you might be right. Regards Ian
Pairofboots maybe your g p takes u seriously my g p just treats me as though I am a hyperchondriac he never helps with the complex symptoms or getting support which are both linked to my surgery in 1992 perhaps ian has been put on loads of medication and that means GPS just turn a blind eye to side effects as it doesn't affect them?
Well I reported my practice once over a year ago to the NHS and they got in contact with them and since their attitude as change, you want to think about doing it. As they think they can treat you as they like. Regards Ian
Ian stated the right action if you are receiving poor care, I personally have only had to go as far as the practice manager. The Dr's are ok, they are GPs and sometimes you have to be firm about what you need. I have had more trouble with the guardians that think they can diagnose rather than grant you an appointment. I am another Ian, and yes I am on enough medication to drop an elephant, but that was following an appropriate referral to the right service.
Take care Charlie.
It’s the receptionist who think they own the place. Regards Ian
Receptionist, we have rottweilers at our surgery, hate them. I'm a retired RN, psychologist and receptionist are natural nemesis.
Regards
Ian
Yes I know what you mean about receptionist they they’re in charge, anyway I’m writing a formal complaint to the NHS about the matter. Sorry about late reply went to bed not feeling well. Regards Ian
Never need to apologise Ian
Just an habit matey, been resting most of the asleep as I feel so worn out. Regards Ian
HI Ian. I was told by the doctor at the vaccination clinic that anything other than short term fatigue, chills, headache or sore arm is unlikely to be related to the vaccine. I had only a sore arm and slight sniffle for a couple of days (Pfizer).
But I have heard several reports to the contrary. My neighbour & wife were unwell for over a week and I know several others who've felt drained and nauseous for longer than the norm, though all settled before too long.
But I guess any side effects are minor compared to the dreadful Covid virus which has taken millions of lives...
Keep yourself well hydrated, eat healthily and have regular outdoor exercise. See your GP if problems persist. Cat x
To be honest looking back at I’m on such a lot of tablets a day it could of been one of them sort of not getting on with each and it was unfair me pointing the finger at the vaccine, but on the other hand I’ve never gone through anything like it until injection. Regards Ian
I think everyone will react differently towards the vaccine as I’ve always said some have all the luck some not quite so lucky. Regards Ian
I still think you need to go ahead and book a second one Ian. You might not react the same now your system has 'logged' the first dose.
My 12 year old grandson caught Covid in March 2020 and is still poorly and exhausted 14 months on (diagnosed with 'Long Covid') .....so think on ! 🤔
I know it's troubling (I had a bad reaction to the flu vaccine) but avoiding the horrible effects of Coronavirus surely make it worth one more go ? What do you reckon .....x
Yes I think I will take your advice and call Covid team tomorrow they’re not far away either. Regards Ian
Cat3 Ian had his 2nd jab that's what thru him out
That’s what worries me. Regards Ian
I have personally been advised against the 2nd jab. Because I take quite a few medications have allergies and food intolerance which my gp doesn't take seriously and I have had no taste or smell for at least 5 years!
I had similar reaction with the flu jab years ago not had it since, I’m still unsure about this second one and might just take your advice. Regards Ian
Could I possibly ask who advised you to not take the second jab. I had about 4 weeks of fatigue following first AZ but my gp still says I should have the second dose as better than having covid. Also still have worse back hip leg pain but I had that before the first jab for about a year
I take 52 tablets a day and I’ve been told similar, in other words you cannot win. Regards Ian
Like I’ve said before to others, you never know what to do for best. Regards Ian
Ian do a bit of research into the vaccine first is my advice as a lot are suffering side effects from vaccinations and its being reported to the yellow card scheme by a lot of people. Look at the phizers website and astra zeneca too. Trust your own gut feelings too. No one here is in any way an expert.
Hello sorry for my late reply just came out of hospital, yes I totally agree with you entirely, you always get this on these forums some genuine like yourself others just know nothing, I’m going for this second injection but I’ve also been told there’s a possibility of a third as well, but we will have to wait and see. Regards Ian
But also think about others.Until we have the majority of the population vaccinated, we'll be going in and out of lock down for the next few years.
48-72 hours of feeling rough is a small price to pay for the long term benefits to society IMHO.
Side effects rarely last longer than that.
Me myself regarding this Covid I don’t really care what it going to do anymore, if it gets out of control it’s the public’s fault for not taking any notice just like when the students where having parties and so on, just because it’s calmed down a little we are not out the woods yet, but people still take it to the extreme, until it comes back three times as bad. Regards Ian
Hi Ian,
as your GP has said that your collapse was a side effect of the vaccine she should have reported it via the yellow card system. It's important that this is done. If she hasn't reported it you can report it yourself online I believe. These new treatments can not be properly assessed for safety if such reports aren't done and it may help prevent a more serious adverse event for someone else.
No she didn’t as I have collapsed several times a week due heart problems, to be honest I don’t think she thinks it’s anything to do with the vaccine due to my other problems, to be honest I’m losing faith in life what’s going off with me, the stroke professor is arguing with the cardiologist vice versa blaming each other what it is, me I’m stuck in the middle. Regards Ian
Did u have the astra zeneca Ian?
To be honest I don’t know which one I had, it’s only in the last two days I found there was more than one, but the dr isn’t very helpful cause my symptoms I’m having cause very similar issues. Regards Ian
It states what vaccine you had on card Ian. I had oxford wiped me clean first time, but 2nd dose at 12wk interval was no where near bad
When you go nurses there to answer questions concerns and do privately, I seen few who expressed concerns and staff where brilliant how they dealt with.
My husband needs GP/nurse to come to our home for my his vaccine due to his behaviour, I know your situation different but your GP can arrange, or if stent next week get jab in arm whilst in hospital bring reassurance and monitored. All the best
Now come to think of it I’ve got a card I will get it out tomorrow and have a look, sorry for late reply went to bed early was not well. Regards Ian
Reactions like yours are not unheard of. I've been speaking with my allergist since I have reacted horribly to past flu vaccines. Re: covid vaccine, she told me to take antihistamines the day of the jab, and for several days after. Says this is not for allergy, but for mast cell stabilization for those of us that overreact. That is what causes the symptoms from overreacting immune system. Also she said to take anti inflammatory like ibuprofen, if you can. More reading has suggested that the supplements NAC and quercetin are good to take beforehand (mast cell stabilizers). Idk abt that personally, but worthy of research.
I'm glad you are going for your second jab Ian, it sounds like you don't need to add Covid to your other health problems.
I'm told the second Astrozeneca one is ok, and I am getting mine on Tuesday. Just in a few people the first one can make you feel rough. Any vaccine can produce a reaction, but it's much better than catching whatever it is you are being vaccinated for (I had an armful for travel a few years ago.).
21 million people have had both doses that is such a vast number!
70% of the adult population have had a first dose now - that's 37 million people, I can't even envisage a number that large. ..
Hence my late reply but not been well at all, plus yes your right but I’m not happy about it just in case it as similar effects to the last one. Hope your feeling better and thing are going right for you. Regards Ian
I'll know later in the week how the second ones go -my second one is tomorrow!
You’ll be ok. Regards Ian
I didn't have any side effects after both Pfizer vaccines.
I may have my second one soon, but it got postponed at11 weeks. because l had a severe migraine. l wonder if it is ok to have it after 12 weeks and how late it can be l suppose 12 and half weeks is fine. Hope your second jab is fine
I cancelled my second jab appt because I was unwell
That’s up to you I did the same then had second thoughts. Ian
I had my second Astrozeneca vaccine on Tuesday evening and I'm fine. First one I felt fluey for a couple of days, but this second one was ok. Arm was a bit sore for a bit, that's all - good result - will be pretty well fully protected in a couple of weeks' time😊
I missed mine through being in the nut house. Regards Ian
You have been having a tough time by the sounds of it. Hope things start to improve for you, I'm glad you got help.
Have you got support from friends and family?
Hello I’ve no friends or family to be honest, don’t ever get a text or call from anyone at all. Regards Ian
That's a shame Ian, never too late to make new friends though.
What happened to you?
Got a problem, I can’t go out because the minute I stand up I get about 20 minutes and collapse as blood drains from my head as my heart is not strong enough to pump it up there due to my heart failure. Regards Ian
Oh that's miserable for you Ian. How long have you been coping with that?
6 years when my sister dumped me over my dads will, plus she got lot more than me anyway as me and dad talked about it before he died, and the last weeks before he died she would not let in the house to see him and that haunts me. Regards Ian
Don’t worry about it I’m used to it now, but as I’ve said before I will succeed at some point, so please don’t beat yourself up about it ok. Regards Ian look after yourself please. Ian
I really wish you wouldn't Ian. When you feel awful like you do now - those feelings can and do change and things do get better eventually - with some help from the doctors.
Do any of your pills for the heart failure trigger depression as a side effect ? (Beta blockers can make you feel awfully depressed for example) It would be worth asking the GP tomorrow to look at everything you're taking and check their side effects and see of you can take something better.
Mind how you go,
Jen
Jen. I’m on 52 tablets a day not once but throughout the day, to be honest it’s a strain on me and I’m near the end, a person only as so much strength to carry on, and I’m almost at midnight with it all, may I ask how old you are?I’m 65 in November I’ve no plans in reaching it, got no one to reach out to only you that’s ever taken a interest in me throughout my life and only if you knew how grateful I am for your messages. I really hope your coping as best you can, but I would imagine you’ve got family friends round you which is good. Regards Ian
Hi Ian, I'm in my sixties too. That's awful young to be throwing in the towel.
Though I did have really bad bouts of depression with the head injury - some of it was triggered by beta blockers - which is why I think you should ask your GP to seriously go through all your tablets for you, and check the side effects for depression, because I know that beta blockers can be prescribed for heart failure.
It'd be daft to sign yourself out just because you were on the wrong pill.
What are all your pills for then? How did you get to this point?
(To be fair, I'm not the only one on here that reached out - loads of people messaged you on here, in the last few days)
I live close to family and friends, but have recently retired, so am gradually making new friends locally, partly through my local church, and partly through U3A groups. It'll be good.
Jen
Never thought you was in your 60s to be honest thought you would of been mid 40s in the way you write things so there’s a compliment for you. Yes I’m on beta blockers the dr and the hospital both say I’m on the most up to date medication only few weeks ago, the only thing I disagree with you is you say mid 60s is young, when you’ve got cardiologist and senior consultants saying to you at this age the body is ready for declining down as months and years increase and that’s a major factor for people in our age group, but in general I except that this may be the case as everyone is different, I lost my mum at 68 and all her sisters at 61 if that is anything to go by I dont rate my chances high if you know what I’m saying, plus when I was younger death bothered me but as I’ve got older it’s become apart of life that’s coming. Regards Ian
Thanks for the compliment then! Family history alters your perception of age certainly. You did lose them quite young. I've got my 85 year old mother telling me I'm just a whippersnapper....
I know heart failure can affect all age groups - really bad luck, but so many things are. What made you try out this brain injury forum?
Seriously, ask your docs - who are trying to keep you healthy with all those pills - if you should be on beta blockers when you are suicidal.
Without diminishing in any way what circumstances have brought you to this point, bear in mind that it can be a side effect of these drugs - I couldn't have stayed on them, even though I had them for a 24/7 headache/ migraine.
The medics might wean you off if you talk to them about it - because you do have to come off very slowly.
Jen
Jen. I’ve had most of the afternoon trying to resolve my issues in my head and got nowhere with anything apart just made it seem more dreadful than it was in first place, so I’ve made a decision and I think this will be the last message that I will be sending. Nice to hear that you still have your mother that was the best words any as ever said to me, so please look after her I really wish my parents where still here, you know I never thought the day would ever come that I would be without them. Take care look after yourself. Regards Ian
Why do you want to end yourself Ian? What are you thinking about?
( Mum's great, when I first had my brain injury, she was driving me around - our joint memories were hilariously bad. Now it's my turn, because she's probably got heart failure going on - just sorting out scans and things at the moment. We met out ar a cafe we like in the lovely weather today for a sandwich. It was good.)
Jen
Jen. At this precise moment I’m at rock bottom I cannot get any lower, I’ve not had a sleep or proper rest for weeks, dr won’t give me me sleeping tablets for certain reasons, as the and weeks go by I’m becoming very more agitated in general, I cannot handle the basics of tasks like make a drink of tea etc, my strength is about as strong as a 6 yr old, I shake at times in my arms to such a limit I can’t hold my phone, my body goes all numb and useless to say the least, that’s without other bits and pieces that decide to have a go.
Nice to hear you mother is doing well, I really wish my parents where here as I think I would be much better but having said that I cannot answer that, then on this forum you get people mocking your situation but they have not got it so why do they do it.
Hope your doing better within yourself it’s seems life is picking up for a little.
Tomorrow I’m at the city hospital for my pre operation check like blood tests and such like, but the mood I’ve been in I wasn’t going to go but decided to go, the procedure is next week sometime not sure of the date but will let you know ok.
Take care
Regards Ian
Sorry your health is so bad Ian. Glad you're going to get your pre-op. Must be quite daunting going on your own. Do you get any sort of help?
Let me know how you get on.
(People on this Headway forum don't mock - too many of us are either caring for people who are in a bad way, or have difficult lives themselves because of brain injury - I've only seen supportive posts to you on here . ) Try not to push away support that's kindly offered.
Take care
Jen
Hello had some bad luck today, I was riding down a escalator when some kids pressed the stop button, it stopped dead with a jolt I lost my balance and tumbled down the bottom like a beached whale, when I stopped at the bottom the kids stood there taking the piss, some girls helped me back to my feet but I wasn’t hurt, to be honest I seen the funny side of it, kids said sorry so no harm done, but was drowsy a little but it soon woke me up I can say that much, thing was I wasn’t mad with them and they kept fussing round me thinking I might call the police, so I went for a cup of tea and bought them a coke each they sat with me for half hour or saying sorry they help me up from the chair don’t them not worry and said you better be on your way and that was that. Regards Ian
Oh poor you - sounds like you were very good indeed with them though. I think you'll have made them think twice about doing that again by talking to them and being a real person to them - very effective.
Jen the way I see it we was all kids once. Regards Ian
That's so a good way to look at it - very fair 😊
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