Cavernova

[Williewind]

Just interested to know if anyone has had an experience of a cavernova as a family member has been diagnosed with this following a recent brain scan....

[cat3]

Sorry Will, I'm not familiar with Cavernomas and it seems no one else is either.

Maybe you could try the Headway helpline ; staff are really helpful and would do their best to answer any of your questions or concerns. Their number is freephone 0808 800 2244 and they're available during office hours.

All best wishes, Cat..

[Williewind in reply to cat3]

Thank you Cat....

[Ian1956]

Similar but mine was caused by a clot, lots of things can cause them symptoms and you wouldn’t believe half of them.

[JRWA]

Yes my daughter has been diagnosed with cavernomas. She’s had to have a craniotomy to relieve a problem one of the growths caused.

[Williewind in reply to JRWA]

They are going to use radio therapy as the problem is at the back of the head and surgery at this stage is too risky...

[Ian1956 in reply to Williewind]

Better than chemotherapy less side effects. Regards Ian

[JRWA in reply to Ian1956]

Yeah I think we had other methods discussed but the best option for my daughters case was surgery. But now they know she has cavernomas they will keep an eye on the others and treat accordingly. So far so good 👍🏼 I hope it all goes well for your family member.

[Williewind in reply to JRWA]

Thank you it’s my brother in law who will be having the procedure on Tuesday at the Royal Hallam in Sheffield....,

[Ian1956 in reply to JRWA]

Many thanks for your reply. Regards Ian

[Ian1956 in reply to JRWA]

Many thanks for your thoughts and hope things turn out fine for your family to. Regards Ian

[Williewind in reply to Ian1956]

Thank you....