Subarachnoid haemorrhage

[sue-66]

Has anyone here had this type of haemorrhage and recovered well? After an accident resulting in tbi?

[Tony-Muzzy]

Hello Sue-66 I had a SH in an RTC in 2007 & wasn't given any information in relation to the area of the bleed & what I should be looking out for in relation to vital changes that had occured.

I returned to work as a police officer doing a full range of shifts to have a bit of a breakdown. I found it helpfull gaining as much information as possible & please don't rush things.

You need to do something I didn't do & that's look after yourself this is a bit of a journey to explore the effects the SH has had on you.

There's no time I can put on this you may not fully recover. It's more about gaining knowledge to cope. I didn't fully recover & I'm currently looking at life changes to care more for myself.

[Kavib]

Hi Sue, I had a suburachnoid Haemorrhage in march 2015 and I'm recovery well, however I was advised to understand that 'recovery is an ongoing process' . I have created video blogs to help others they are only 15 mins each but it may help? Link below :

youtu.be/qM7qgw79k_o(Not working as expected?)

[Dennydjhaz]

Hi Sue, I had my skull fractured in 2 places leading to tbi, plus a multitude of other fractures in my leg, spine, de gloving to my right arm, punctured lung, then MRSA. This was in 2003 and I have to tell you I live a happy and full life now. I spent 8 months in hospital, 5 weeks in a coma and after that 6 months in a Neurological Rehab unit in Fizakerley Liverpool. These days unless I tell people what happened to me they do not know. In 2008 I wrote a book about this "It Was Not My Time" to help people know that you can recover from these sorts of injuries. When I was an in patient Headways helped me a lot, I was advised to keep a diary and it was this diary that became my book

[Alice5]

Hi Sue, my son has a SAH in 2011 and was in hospital for 5 weeks. He has made an amazing recovery. He works, looks after his children and to look at him you would never know he had been so ill.

There are some subtle changes in his personality but this is to be expected after a brain injury.

You will get a huge amount of support and gain knowledge and understanding by being part of this Headway group. I found it so reassuring to know we weren't on our own and situations we were going through were common after any sort of brain injury.

Hope all goes well, look after yourself

Alice x

[sue-66]

Thank you all for taking the time to reply. I forgot to say it's my partner not I, that this happened to. It was 8 weeks ago and I have had to ask to find out what sort of injury it is. You don't really get the info you need from the hospital. He is doing well considering they wanted us to withdraw treatment in the early weeks, just wasn't sure about the injury and yes, I googled, not the best idea.

[Sweet-pea]

Hi

My sister had this type and is doing well. It was severe for her, she was in a coma for 10 days, could not walk, could not breath on her own and could not

Swallow. She was also resuscitated three times.

4.5 years on she can walk albeit with a stick and can't walk far, but she is still the same amazing character she always was! She doing well. She need a lot of support as her bleed was so severe so she needs 24 hour care which is covered by Carers and her husband. She was never arty but she can. Now paint and loves painting landscapes which she is fab at and has even been in exhibitions!

Have faith and know things take time.

I don't know if this has helped at all!

[sue-66]

The replies are a huge help, I know each one is individual, but it gives me hope when I hear other people's experiences and recovery. I know its going to be a long time recovery too.

[mowgli123]

Hi

Firstly, I am sorry to hear this. My husband had this too after a serious car accident... and the good news is that after 2-3 years he was able to return to his studies as a child nurse. He is in his final year & although this has been a struggle for him he has done himself proud.

He was in a coma for 9 days & in hospital for 3 months.

Never give up hope xxx

[sue-66]

All positives give me hope and that is great news for your husband

[Tia-01]

Hi Sue

My husband fell backwards down our stairs in our home in 2008 he was a paramedic at the time he suffered from SH along with fractured scull. He was in hospital for 8 weeks returned to work 6 months later far too early as his brain was still in recovery!

Please don't let him rush back to work too early this was my husbands downfall. I pushed for rehabilitation for him as he had cognitive problems i.e. Change of personality anger and social issues but he thought he was fine. As head injured do! If you think your husband has any issues I urge you to push now for him to be assessed. Your dr/consultant can do referral for this to be done.

We are nearly 10 years down the line it's been hard he lost his job he loved through lack of understanding/compassion by his employers but he's here with our family to tell the tale a very lucky man indeed.

I hope your husband makes a full recovery. Best of luck for the future x

[Katieweb]

Hi I'm recovering from a sub arachnoid and then a stroke . I'm recovering but it takes a long time all you need is to be patient. My new memory is shot but my old memory is still all there I have to use new strategies to help me such as taking a diary everywhere with me. The main thing that has helped me is my families support without them I would of given up .

Just remember it's going to a long recovery but keep positive

[cat3]

I'm another who's survived a SAH (Dec2011) Sue. After 2 months in hospital and a determination to be back to 'normal' for my family's peace of mind ASAP, I soon learned that the trick is to work towards adjustment rather than 'what was'.

I'm 5&1/2 years on, and everyone seems to have accepted who I am now...............which is someone with less patience, poor short term memory & word recall, poor balance and constant fatigue ; so not the same person in many ways, but I know I appear fine and attended a wedding recently where I managed to blend in seamlessly ! (needed to sleep most of the following day though).

If/when impatience kicks in with your partner or yourself, bear in mind that time is your best friend because, at the end of each day when we sleep, our brain regenerates a little more and healing can continue uninterrupted.

Sending best wishes for better days ahead for you both. x

[sue-66]

Thank you for your replies he is now waiting for the assessment and referral for rehabilitation. I won't rush him into work and when he does sleep, I don't disturb him. He slept deeply the whole visiting time last night, but I sat and read my magazine and let him.

[cat3 in reply to sue-66]

Looks like your man's in safe hands Sue ! xx

[sue-66 in reply to cat3]

Thanks cat xx

[spideyman]

You cant guage your sons recovery on someone else as everyone is different.

I had a huge one back in 1987 when i was 18. I went on to have 2 more smaller ones.

Oct 2013 i had an aneurysm develop on the cerebellum caused by high blood pressure.

I had it injected with glue as it was leaking and due to burst.

The glue stopped this but it gave effects of a stroke.

Read my profile and youll see its not stopped me but REMEMBER no 2 head injuries are the same

[sue-66]

I don't know how my partner will recover, but I find some comfort & a helpful insight into what I could expect. I know every brain and person is different and he may or may not recover to a degree like all the experiences I hear, but advice on how to help him etc from this support group, has been a help not only what I can do for him, but its been a help for me on the low days too

[Sambo73]

Hi, our son was assaulted in 2015 and suffered the same injury. He still cannot work due to being unable to process information and getting confused in situations. We are so lucky that his friends take him to the cinema and out for meals. Our son is very different now, even his appetite has changed. We care for a very different son but love him sooooo much through no fault of his own. In the beginning the differences are so hard to come terms with, but eventually you do, or are still trying to. The loss is so traumatic, it does really effect evey aspect of your life. We are only just over two years down the line and times can be very challenging. Good luck and know that everyone on here are so supportive and are there for you whenever you are feeling so low or just want to chat x

[sue-66 in reply to Sambo73]

Thank you for sharing your life now, even though I know he will

Change, I will still love him and help and support him. He has such a good list of friends, who are very supportive and will continue to be, they have been there for me too, which is great, as I didn't know them well before, but now I can ask for help and they see him regular, so are able to see how he his and progresses too. But even with friends and family, you can't always get help and understanding, or info and experiences, like you can on here

[Alibongo60]

Hi sue, I had a SAH in January, I think I have recovered well, I have returned to work but have had to reduce my responsibilities and hours. I have problems with short term memory loss, headaches and fatigue, which then affects my co ordination, and makes me clumsy and wobbly on my legs, but have very grateful to still be here. Mine was due to a ruptured aneurysm, not an accident though. You sound very grounded and I am sure will be a big help to your partner, my family have been very supportive and helped me in my recovery and still do, we can laugh off when I come out with something bizarre and very patient with me, especially when I burn the tea, keep posting on here , I have found lots of good advice and support from lovely people on here, lots of luck, love Alice xx

[sue-66 in reply to Alibongo60]

Thank you Alice, the support and advice on here is amazing. I'm so glad I joined. I know my partner has a long way to go and it would be great if he can go back to work, but that will be down to his recovery and if he is able to cope. There is nothing wrong with hope and hearing other people's experience gives me an insight into what can and can't be achieved. X

[lucyjenarog]

Hey Sue

How are you today?

I had a SAH 4 months ago. I've improved over the months but still have a few problems such as balance and double vision. I'm staying positive and praying that these improve in the near future 😘 fingers crossed!

xx