Cavernova: Just interested to know if anyone has had... - Headway

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Cavernova

Williewind profile image
11 Replies

Just interested to know if anyone has had an experience of a cavernova as a family member has been diagnosed with this following a recent brain scan....

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Williewind profile image
Williewind
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11 Replies
cat3 profile image
cat3

Sorry Will, I'm not familiar with Cavernomas and it seems no one else is either.

Maybe you could try the Headway helpline ; staff are really helpful and would do their best to answer any of your questions or concerns. Their number is freephone 0808 800 2244 and they're available during office hours.

All best wishes, Cat..

Williewind profile image
Williewind in reply tocat3

Thank you Cat....

Ian1956 profile image
Ian1956

Similar but mine was caused by a clot, lots of things can cause them symptoms and you wouldn’t believe half of them.

JRWA profile image
JRWA

Yes my daughter has been diagnosed with cavernomas. She’s had to have a craniotomy to relieve a problem one of the growths caused.

Williewind profile image
Williewind in reply toJRWA

They are going to use radio therapy as the problem is at the back of the head and surgery at this stage is too risky...

Ian1956 profile image
Ian1956 in reply toWilliewind

Better than chemotherapy less side effects. Regards Ian

JRWA profile image
JRWA in reply toIan1956

Yeah I think we had other methods discussed but the best option for my daughters case was surgery. But now they know she has cavernomas they will keep an eye on the others and treat accordingly. So far so good 👍🏼 I hope it all goes well for your family member.

Williewind profile image
Williewind in reply toJRWA

Thank you it’s my brother in law who will be having the procedure on Tuesday at the Royal Hallam in Sheffield....,

Ian1956 profile image
Ian1956 in reply toJRWA

Many thanks for your reply. Regards Ian

Ian1956 profile image
Ian1956 in reply toJRWA

Many thanks for your thoughts and hope things turn out fine for your family to. Regards Ian

Williewind profile image
Williewind in reply toIan1956

Thank you....

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