No luck!

[Dogsabighelp]

Didn't get face time call again last night.well I did see him briefly,he was falling asleep so I just told them to leave it.nurse said he had been very down all day,I did say his music may help.couple of low days again for me.its so upsetting.I thought things would be so much better from now on...

[Nanapal]

Good morning D, sorry to hear not a successful FaceTime call last night. Try not to let the little setbacks get you down - low mood days for son and yourself are inevitable but don’t let them break either of your spirits. I expect due to the bank holiday weekend there will have been no therapies taking place (if same as ours sons rehab unit) so he won’t have had much stimulation. Here’s hoping today is much brighter for you both and you start having better times.

I understand the deflation though after the anticipation of the Facetime call. We felt it on Sunday when our son was only awake for 10 minutes at the start of our 2 hour visit. He only listened to us in that awake period but didn’t respond verbally before he fell asleep. We so wanted/needed some interaction with him but it wasn’t to be. Like you emotions take over and you feel cheated out of the limited very precious time we have with them. Nothing we can do but put the disappointment behind and look forward to the next contact. Best wishes Nanapal. x

[Pairofboots]

Hi, it's a bit like the motion of the tide, sometimes a high tide sometimes low.

I'm sure his music will help. It will stimulate his brain, block out confusing noise from others, and it is something he just enjoys regardless of thinking too deeply about it.

I'm not saying that your son would have the same experience I had, but I had it really tough to cope with for the first few years. Noise, light, silence all presented challenges. It took a GP to mess things up completely before I finally was stabilised.

It is a marathon with much of it up hill to start with. But hold on to the fact it does eventually hit level ground, and eventually smooths out.

You are both on the same path, but for different reasons, you have our support, your son has you and all of us.

[cat3]

I get how disappointed you are D. Seeing your boy up-close but with no interaction is such a different level emotionally from not seeing him at all. But the 'One step forwards - two steps back' is par for the course (you know that m'love).

This closeness that you've needed was always going to be mind-blowing especially as we, as mums, want so badly to make everything better. The visual contact with your son and his predicament after the vagueness of the past 3 months is a shock to your system however prepared you thought you were.

He's not ready to come out of his protective shell just yet, but when visits permit you'll help him back with familiar stories, physical contact and loving reassurance. So sorry it's so hard for you ; take care D. x

[Skallagrigg]

Oh it is a rollercoaster as has been said, emotional, hugs