Hello..👋

[Crazychickangel]

Happy Easter everyone!

I'm 15 months on from suffering encephalitis hsv in jan 20 but doing pretty good. I know how lucky I am to be here. Adjusting to my new normal and trying not to be so hard on myself.

[twice]

Hi happy Easter to you I don't have any knowledge of your type of brain injury, mine was a TBI.

Just wanted to say welcome to the forum.

[Crazychickangel in reply to twice]

Thank you.

[twice in reply to Crazychickangel]

Since last week I have been doing a bit of research on encephalitis, and have read some incredible stories of survivors. I would just like to congratulate you on what you have achieved in such a short time.

[Crazychickangel in reply to twice]

Thank you so much. I'm proud to be a survivor. I was bbc radio in Feb for World encephalitis day and my husband and his best mate are walking 100km in July in aid of the encephalitis society.How are you doing? How did you suffer your TBI if its ok to ask?

[twice in reply to Crazychickangel]

100 km walk is incredible thing to do, I fell down a flight of stairs backwards and smashed my head on the radiator at the bottom, ended up with skull fractures and a bleed on the brain, but still trying hard and laughing every day which is good (I think) 😄

[Crazychickangel in reply to twice]

Oh goodness. How traumatic! Was this fairly recent?

[twice in reply to Crazychickangel]

It was 4 years ago, I also had surgery to remove a brain cyst last year but getting back on track a bit now, although it took me a few years to finally come to terms with accepting life with a brain injury

[Crazychickangel in reply to twice]

I think that's the part i struggle with the most and I know mine is fairly recent. Everyone sees you as 'fine' which is correct to a certain degree but I don't know abiut you but inside you feel lost abot knowing your not you anymore. Are you able to work?

[twice in reply to Crazychickangel]

That's my biggest problem with it is that people see you as fine on the outside but inside there is so much wrong, the only thing I have in common with the old me is my name, but I kind of like the new me now. I've been through so many different emotions in the last few years and it wasn't until I accepted that the old me was gone forever that I could move on a bit, I've not been able to return to work but hopefully I will one day

[Crazychickangel in reply to twice]

What did you do for work?

[twice in reply to Crazychickangel]

My last job before my accident was working at the mental health charity MIND

[Crazychickangel in reply to twice]

No way! I'm in the charity sector too. I work for Carers Trust.