Covid vaccine

[Dogsabighelp]

Hi all.had my vaccine on Sunday.felt a bit poorly for couple of days like a cold/headache etc.poor son has had a rough week or so the severity of his b/injury is now after 14 weeks becoming more obvious.hyperthalamus damage means no control over body temperature amongst other things,spasticity issues not improving either.I have bought a tablet and will send to hospital in order for us to have some contact which he so desperately needs.I'm hoping and praying some contact will help him.its so hard when there is never any positive news isn't it?

[Painting-girl]

Sorry to hear this D. How are you feeling now after the jab - I didn't feel totally ok again for a week. So relieved now I'm past the three week point though.

[Dogsabighelp in reply to Painting-girl]

Hiya,I'm fine now thanks for asking,just a bit of a headache nothing that can't be sortedx

[Gordo6500]

Hi sorry to hear your sons having a hard time. Research Omega3 protocol, helped me considerably for brain recovery.

[Dogsabighelp in reply to Gordo6500]

Hi g.well thanks for that info bout omega 3.it would seem of much benefit from what I've read,in any case it won't hurt to mention it to consultant.many thanksxx

[Gordo6500 in reply to Dogsabighelp]

Hi D, check BrainCare.center if you want more info. Some drs have knowledge of omega 3 , the people at this site wrote the book on it ! My experience with omega3 was very positive . I’m still taking it 7 months post tbi.

[Dogsabighelp in reply to Gordo6500]

Very interesting.now I spoke to a nurse last night.he told me vitamins etc are introduced into patients as a matter of course with feeding by whatever methods.so I asked what?he said usuals ?well I said did it never occur that omega 3 is a proven aid in b/I patients?he said never heard of it,this vitamin( d) I think he said is and has always provided within proteins supplied to nutritional requirements to patients unable to have control.I asked could he make note of our conversation of course he said.so there we are...

[Gordo6500 in reply to Dogsabighelp]

Hi D, there is a book called When Brains Collide It outlines the omega3 protocol, what kind to get and how much to give and what to tell your Dr. , nurse , I can only tell you from my experience . But if you can get the book you can make an informed reasoning to them too give it to your son . It certainly is worth a try as it has helped many people. I had to buy and take it myself after being out of hospital , but the sooner the better is advised by the Dr. who wrote the book and developed the protocol. Here in the U. S. The after treatment is go home and rest which is not enough! As most Drs. don’t know about this protocol. Good luck.

[New_beginning]

Hello dogsabighelp, just thinking he has broken bones that are healing and movement with pain will also impact on body temperature also. Botox injections with limbs dont necessarily work for maybe few weeks even in children. The involuntarily movements at this stage (sorry to use early stage, it's only sitting well with me at 12mth mark) is still early days. I hope with video calls soon with consistency please get PALS involved if any issues with timing, days arranged.

I'm glad your feeling well from jab now.

[Dogsabighelp in reply to New_beginning]

Thanks so much for response.just seems he is one step forward 2back at this time,more things becoming apparent as time moves on

[Nanapal]

Hi D, glad you are feeling better after your Covid jab.

My son has the same problem with temperature regulation. He has either a fan on all the time or the window opened slightly. A lot of the time he doesn’t even wear his t-shirt he is so hot. This problem has slightly improved over the last few weeks I am pleased to say.

I agree with New_beginning the Botox injections can take a few weeks before any improvements can be seen - 🤞they will have some impact on the spasticity. Unfortunately it is a long, slow process but the injections and splint wearing is beginning to show some good improvements with our sons legs.

So pleased you have got a tablet for your son as you both need regular contact. He needs your support and you need to see/talk to him - the not knowing is worse than the reality.

I hope he gets a rehabilitation placement very soon. Take care Nanapal. x

[Dogsabighelp in reply to Nanapal]

Hi n hope you are all well.son is still h.d.u so no windows and definatley no fans.Walker gate can't take him because of throat tube.he seems to have gone back over last week or so.I'm told by staff that on this ward tablets are not in use,hence my having to buy one.my neighbour is currently setting it up for me.peg is due to be reintroduced on 14th.I'm so tired of all negativity coming at me from hospital,police etc.someone is out there getting on with life having been told its OK to wreck other peoples?how can this be possible?

[Nanapal]

Hi D, we are all doing ok thank you.

Sorry, I didn’t realise your son was in the HDU. Once he is on a general/rehabilitation ward maybe he will also benefit from fan/ventilation. I know it is so difficult trying to keep positive when you get faced with setbacks rather than improvements. Our son has endured so many of these as well. Keep holding on as things will turn a corner for you soon - might be only the slightest thing but whatever it is it will help you refocus. We were also in limbo when we were told Walkergate couldn’t take our son initially but then he met criteria after a few more weeks.

Let your anger and frustrations out as better that way. Then when you do speak with your son give him all the encouragement, love and support you can - I am sure it will give him a massive boost. Keep talking here and take care. Nanapal. x

[Dogsabighelp in reply to Nanapal]

Hey nan.I had good day today so far.bunny/egg left on my gate,and pal sent me lunch.its surreal life.my lovely next door have set up profile for sons tablet,we can send that to him 2 morrow.its just the unit(4 bed) h.d.u.let's wait and see what happens when I speak with him?