Exhaustion doesnt cut it, i have yet to really think of words of this crazy year and our new journey. But looking back at my first post despite the hardship, I see a jump in progress with memory. Behaviour still dodgy defo fatigue causation, word finding possibly best it will get, but its absolutely fine. Physical skills he still has retained i.e fixing stuff, Been getting him to do tasks in small stages but he can be fixated and can long the task out as he changes to make better. He cooked his first meal yesterday with supervision and today we cooked meal together.
Emotional cognitive behaviour still not really there this is going to be hard, long time as prolong episodes. Hes lacks sympathy also, but i fear this be long term too.
Social, well yet to hear from blue badge team since appealing, now that theyve bothered to contact professional just a matter of waiting. But we went on drive today,but no getting out, yes still bit dodgy going places, so totally avoiding.
Family functioning hes doing brill with our 2 yr old, she not long turned 2 before TBI, he didnt acknowledge her first 4 weeks home and 6wks he actually picked her up he helped with nappy. Since mid august worked together as a team and shes potty trained, he does her dressing, breakfast and tea. Though on bad days he hides away. But past 2 days shes grabbing for his hand to play, think shes been wary due to behaviour but kicks off if im not in view. 15 yr old doing great think hes glad to be away at school for break, im so proud of him.
Work, well ive gone back this week on phase return. Weird, mid oct full time and juggling husband going to be hard. Think will do carers assessment when im struggling further, plus having to talk about reason is a barrier,m for me, i still cant talk about this raw deal. But on the brightefr note, i have Hope still.
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It may still be a work in progress but it looks like your man is trying really hard to make his comeback !
It'll be exhausting for some time yet, but with the normality and routine of home and family I hope he'll become more settled and achieve his optimal potential.
It does seem like there is progress. I hope things continue to get better for you all. It is still early days, so there's plenty more time for things to improve. I hope before too long things will get a bit easier for you too, especially with you having to go back to work. Thinking of you all.
Although I am sure most of the time it doesn't feel like it, you are both obviously making progress as you have observed yourself by reflecting on your original post. I have found the use of some form of journal useful in that regard, as it allows you to appreciate how far you have moved forward on the days when it feels like there is no end in sight. I appreciate all our stories are different but there is some commonality in that I believe.
Coming from the other side, I can appreciate the frustration your husband must be feeling and trying to control emotions can be tiring in itself. I feel the swelling of anger on numerous occasions but am fortunate enough to be able to maintain control, although outwardly will nevertheless appear grumpy (more than usual anyway!). I wonder whether he recognises his behaviour isn't quite the same as before the incident?
I can perhaps also appreciate the frustration of not being able to physically do what was taken for granted, although once more, I have been more fortuitous to have recovered mobility rapidly. It sounds like your husband has a longer journey ahead of him and this will no doubt be draining for you, especially given the 'normal' challenges of having to deal with children, work and the current wider issues related to covid.
Having read through some of your posts I wonder whether you have the opportunity to speak to someone independent and perhaps professionally trained to assist yet. It sounded like you were feeling too tired and emotional previously but having an avenue to at least expose your own frustrations I believe is essential to ensure your own health isn't irrevocably impacted. Not that I am an expert of course, I am merely offering my personal opinion.
Nevertheless, the fact you have posted this, highlighting all the progress while acknowledging the journey ahead is surely a positive sign. I'm genuinely glad you are managing to see the improvements, as I found personally, being able to focus on positives is what keeps some sanity through challenging times.
He has brief insight, but when hes in the 'Zone' no insight he hides away and I have to intervene when courage good to tackle his reasoning , this is hit and miss. Hes very mean towards me on poor behaviour, Ive yet to have a 24hr period he has been nice towards me, yesterday he nearly went 12hrs, but just before i go for my 30mins Me time (like now) he became confrontational all started Im trying to start reading when daughter gone bed, its about emotions, stress having impact on physical health. After a shamble gp telephone call a while go, telling me what i already know , thought stuff it will look for book to address own issues. I have irregular heart beat and been getting worst lately, i just dont have time to go GP, and unlikely to been seen, but sweats with palpitations that stay 70mins is new more regular chest pain for 2 days after epidsode. I honestly feel with poor behaviour, no respite, been full steam, now back at work just body taking an hammering. I tried to explain to husband why im reading book but he got cross, just no sympathy, as rightly so; he makes its known he nearly died and its of no interest to him, he then got confrontational, i just left the room silightly. So this be a typical day as a carer to my husband
The Brain Injury psychologist was meant to visit Thursday after bad visit last Tuesday , then stated will visit again yesterday, no visit. Thats the only professional input we have. No other input.
Really sorry to hear all this. It certainly sounds like you personally need support, not just for your husband but for your own wellbeing. I assume you have reached out to headway?
I will call in the near future. But as it stands and how its been since hes been home 31st March, im on my own. Despite the behaviour, its actually nothing compared to PTA days, its just long, take a deep breathe days now, ride it out sort of situation .
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