I really don’t know what to do, I am living mostly independently need a little help with cooking cleaning the big jobs & washing&drying laundry
From the start Since my ABI through rehab I have vowed that I would neverhave to have a care package I worked in community care for many years the thought of this mortified me,(this is nothing against anyone who requires a care package at home they absolutely have their place& help people to live as independently as possible am helped by my partner& mum who have both burnt out so now I’m back to the question of care package?! I really DO NOT like the idea of a young girl my age helping me i just feel it would destroy what’s left of my soul (which is basically nothing anyway)& break my heart and then popping in through the day just just does not suit my way of life I want to maintain as much independence as I possibly can but I worry for my family members who are finding this all a bit much this whole situation is making me very anxious & heavy hearted
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Charlie90
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It is difficult but the way I look at it is that when we simply cannot manage certain things we have to make compromises
Would maybe something like having someone come once a week to do the big tasks and some advance meal prep (things that can go in the fridge/freezer and can easily be heated up when needed) be something that might work for you?
Could it be that some practical help might increase your independence ? It seems at present that you and your family are exhausted and have no 'down' time, so you've no freedom to look for the good things in life.
With chores minimised you might have more space to organise your days better and allow for periods of leisure time. I'm sure that all three of you deserve some happiness and a better quality life.
Independence is worthless if it deprives you of healthy choices.
Hi, I just thought I'd reply as I'm a carer to my friend Andy who has a Traumatic brain injury last April. He was 69 and although struggled to accept he wasn't able to do some of the things he used to be he has managed with washing and comes out a couple of times a day to walk my dogs. I have found it hard myself after a year afterwards as I got tired and found it quite hard doing things for him. So I contacted our Adult and Social Care team through the council Care Connect and they told me of a Agency who could provide some help for him and they took him to the shops and checked his flat every 2 weeks, you could have more depending on what you want to pay.
Then this stopped in March due to the covid restrictions on visiting. He needs help with cleaning the hard to reach things in his flat and help with shopping so I thought I'll look at the local care agencies to see if they could help. The first one I contacted was called HomeInstead and the manager was very helpful and came round to us for a chat and tell us what they can provide. I'm a lot more relieved as also I thought if my friend needs any further help this agency would be able to help advise me too.
They match their carer to the person they go to, and this Monday, a lovely lady called Carol came for the first of 2 weekly 2hr visits. My friend can choose if he'd like to go out or if he wants help with the cleaning and washing. Regarding meals he has got Meals on wheels since he came out of hospital but he's had Wiltshire Foods too which are frozen and he liked. I think you'd be able to ask a agency if the carer is able to cook meals if you'd like that.
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