Ovcrevus

Hi. I have had MS for years and after a new lesion in temporal lobe I am encouraged to go back on a DMT. Ocrevus was my Doctor's first choice, if I agree. I have been getting by with diet, exercise, and supplements for years and no flare ups until now. Does anyone have experience with Ocrevus?

[Tracelr]

No My neurologist recommended I take a Copaxone

Think I’ll stick with that drug it doesn’t kill an unborn baby inside your body if you want to have one

[Hidden in reply to Tracelr]

Thanks Tracy. I was on Copaxone years ago, but since I am over the 10 year mark since diagnosis dr thinks I should go for big guns. I was diagnosed initially in 2008, after denial I think it was 2009 I started on Copaxone. Did not have huge side effects, only irritation at injection sites after a while. Thank you for your feedback! I won’t be getting pregnant but I don’t like the serious possible side effects listed on some of the “big guns”.

[Tracelr in reply to Hidden]

I think about switching meds but I have no active lesions for 3 years now and the doctor looks at me nothing to do for you.lol

Next mri in March doc appt April

So think Copaxone doing what it needs to do

[Tracelr]

I don’t like the side effects and the option they put on there this may kill you

[Tracelr]

What is the significance to the 10 year mark

[Hidden in reply to Tracelr]

I didn’t know that either Tracy so asked dr and he told me it kind of changes the type of MS from relapse/remitting to the next stage. I don’t think they use specific labels on the types now but I think i will look this up to understand it better. I don’t think labels are important anyway but apparently the way the MS is treated has different protocol after so many years?

[Tracelr in reply to Hidden]

I guess as they don’t know cause

Have a cure ..

makes me wonder how they have meds to slow down

[Hidden in reply to Tracelr]

I played Dr. Google and looked it up with this as a very general explanation of what my Dr was talking about. I’m certain it’s different with everyone as each of us and our MS is unique.

“People with secondary progressive multiple sclerosis (SPMS) start out with another type of MS -- relapsing-remitting multiple sclerosis.

If you've been diagnosed with SPMS you may have had relapsing-remitting MS for a decade or more. That's when you may begin to feel a shift in your disease.

The changes are often not easy to recognize. But you may notice that your relapses may not seem to fully go away.

Most people with relapsing-remitting MS -- about 80% -- eventually get secondary progressive MS. The relapses and remissions that used to come and go change into symptoms that steadily get worse. The shift typically begins 15 to 20 years after you’re first diagnosed with MS.

Because multiple sclerosis is such a complex disease, it can be hard to spot the changes that signal SPMS, even for health professionals. Doctors often wait at least 6 months before they diagnose SPMS.

Symptoms of Secondary Progressive MS

Relapsing-remitting MS can be unpredictable, but there’s usually a pattern of clear attacks followed by times of recovery. With SPMS, relapses tend to be less distinct. They may happen less often or not at all. When you do have relapses, recovery is not as complete.”

Don’t take the above as any professional advice; again, I dr. Googled a general explanation as to what my Neuro was referring to in my case. Who knows for certain? Medicine is all merely practiced and we know our own bodies the best. We must remain strong advocates in our healthcare! I have yet to start the Ocrevus. Hugggs!