Talk to those who truly know...

[BaronC]

Talk to those that know...

youtu.be/XQt2rB9hzwU(Not working as expected?)

[eddstjohnoneday]

hi baron your so right 100 percent im going to show people who around me who havnt a clue see most people you meet ive been on my mobility schooter and i always help or chat to elderly anyone really and from my heart as we all do and its the not elderly people

people id say my age lower god you look fine we as a family here everyone must of had encounter s with people i thought if i were a bandage around my head with fake blood on it be like a hat and people would look at you and when they ask god what happened to you eddie tbi severe brain damage to frontal lobes whats all the blood and bandage then you take it off and say no inside my brain brain damage invisible maybe baron lets design a cap

for all to were all the best my friend eddie

[Miss_B_Haven]

Powerful stuff. made me weep for him and for myself.

Thank you.

[BaronC in reply to Miss_B_Haven]

Twas I! Don't weep for me, my friend. I'm fine, accepted my life loooong ago I was simply making the point that only those of us who live with brain injury know what it's REALLY like

[Miss_B_Haven in reply to BaronC]

Ahhh. Nice to meet you sir!

I think it was that very acceptance that made me cry. Struck a chord, that WE all accept while others question.

[BaronC in reply to Miss_B_Haven]

Too true! Feel free to contact me if you’re struggling at any time

[cat3]

I've been SO exhausted and dizzy this last few weeks and had a few falls so thought I'd mention it to my GP during a medication evaluation. He looked like a duck in a thunderstorm ; totally out of his depth. When I said I knew it was all part & parcel of the brain haemorrhage he shook his head....'NO, no, no, It sounds more like a virus or medication problem'...….. x

[BaronC in reply to cat3]

That's progress! My doc assumes absolutely EVERYTHING is brain injury related

[gabimou in reply to BaronC]

Exactly or anxiety!

[eddstjohnoneday in reply to cat3]

are cat love hug x hope your ok god a few falls and its a virus or medication even if i said

cat change your doctor love they still wouldn't understand he should of sent you to a and e for scan love hope you get better love no this cat only us are family here were special

its hurts me the way he said that to you love and all are family here your a very special member and help so many and me hug x love eddie

[cat3 in reply to eddstjohnoneday]

I did change Eddie ! ……..that's why I chose to see him as he's new and I hoped he might be different !

Oh well, a different practice perhaps ? But I'm seeing the neuro-consultant next month so I'll wait 'til then & probably get a scan. Thanks for your kind words m'love. Hope you're doing ok. Cat x

[gabimou in reply to cat3]

Hello Cat,

not been on here for ages and you are right about the Dr's i had a conversation with my neurologist a while back who wasn't that impressed when i told him if he didn't know and other dr's about my brain op i would be treated differently,in other words probably be listened to more.

Hope you get to the bottom of the problem and get listened too!!(**,)x

[cat3 in reply to gabimou]

Yes, an uphill course for most of us ! But I know you'll be battling on Mandy ! Take care and keep up that indomitable spirit of yours..... xx

[gabimou]

I haven't been on here for ages and when i watched this it's 100% spot on and needs to be seen by so many people who haven't a bloody clue.The thing is just because from the outside we look ok so everyone thinks or rather doesn't 'think' nothing is wrong

.What pisses me off more than anything is the one's that whinge'i'm tired',i'm thinking you haven't a clue because in general specially at work i don't really keep saying i feel ill,tired,knackered,exhausted,off balance and have found it's the negative one's who are the whingers(non brain injury) and on many occasions have told them to shut up and get on with it,keeps them off my back anyway....lol

[BaronC in reply to gabimou]

Precisely why I'd love the clip to be shared by as many folk as possible, but as usual, it won't even scratch the surface. Folk just aren't interested in what can't be seen and can be easily disregarded. No surprise the DWP and MPs fail to sit up and listen really.

[WinB]

It helps just to know we aren't the only ones Baron and if they can get better even half way there so can we after all we survived the worst bit XXXX Keep a smile for bad days and a happy song xxx When and if possible