secound impact syndrome question my family

[eddstjohnoneday]

ill just say it as it is instead of sometimes i start and my tbi its like its stuck with what ive learned yet nothing else is going on all my brain is wanting to get it out and im on screen keyboard on telly wireless mouse

feb 08 2014 after over a year summer 2012 i remember telling my mum keep on going dizzy when i bend when i turn my neck really big black dots or like someone walking past me out of corner of my eyes and when i used to put my head back it was like dizzy electric shocks like no oxygen for few seconds getting worse i no i told many people and fact my mother even dad to the point now

after a year of complaining i want mri something not right feb 08 2014 finally got mri

have radiology findings severe trauma to the frontal lobes ok now all the time dizzy electric shock s thudding longer periods more frquent got another scan 30 april 2014

with contrast dye then another straight after 2 scans at same tim e now when i got off the bed thing you lieon to go in mri when they put dye in i swear i felt terrible pain behind left ey in brain ive got it all writendown truthfully i was all over the place my back was bad but my head besides that pain ln brain that till no wplays up

so iwas wobbling nurse said sit down for 15 minutes eddie i just wanted to get home to my bed to my kids i new something was wrong now 3 nice nurses meaning nice hearts

i didnt anyone to no i thought im dying i drove home shouldn't of but im a safe drive r

but shouldn't of drove but my brain was so unexplainable like i was floating in the room other thigs anyway i got the results another severe trauma to the brain same side same place thats double inpact syndrome

Second impact syndrome (SIS) occurs when two concussions happen in a relatively short period of time and the second concussion is inflicted before the first has fully healed. This causes the brain to “lose its ability to self-regulate pressure and blood volume flowing” and causes rapid and severe brain swelling. so i wasnt told now i got told last year that ive a fractured sckull which changes shape after 5 years now i want it in writing i suffered sis im very lucky i care for helpline angels and my family here than me nowxwhen i mention this thats what happened everyone avoids answering

i cant understand why they never told me this gone really brain tired sorry

[cat3]

Yes Ed, you're wise to make sure you have everything in writing. I'm sure the doctors will 'glaze over' if asked about oversights or misdiagnoses in the past because they can't afford to risk legal action from patients. But the NHS is so overstretched that this is only going to get worse.

My son's partner went undiagnosed with a serious condition for over 18 months and has twice needed major surgery to try to reverse the damage. It's still unsure whether she'll recover and yet the surgeon explained what an easy fix there is if diagnosed quickly !

I hope you're coping a bit better m'love. Take care of yourself. Cat x

[eddstjohnoneday in reply to cat3]

thanks cat love hug x hope your ok love the social hasnt even aknologed it as a dissability

i had idea cat wear a bandages around our head with tomato sauce on it and when someone says god whats wrong just take off and say no the tbi inside so many people

cat as we as a family dont understand or believe tbi i just want it in writing that's what happened then if i show double inpact syndrome on letter to non understanding people

if they google it it shows how dangerous it is . i got electric schooter cat and had to go shop parked inside co op now they all no staff and im walking round get my ginger berry s pure and my hip goes holding basket and back and went counter for quick serve not today love short staffed felt humiliating i couldnt stand straight going to phone them manager

not to get anyone into trouble again how you look on out side cat if someone else felt like me with back hip going i didnt say anything because sometimes its better not to just wanted to get home but thought you have no idea the pain im in right now my sciatica throbbing hip normal day as you no love hug x cat

[cat3 in reply to eddstjohnoneday]

………..so true about the head bandage & ketchup !

At my local Tesco people go around the aisles in their scooters and can have assistance from a member of staff free of charge.

I understand how Co-op stores are too small to accommodate scooters but, ideally, all stores should provide help for customers with disabilities.

Hope it's a better day for you today Eddie. Love Cat x