Out of interest how long did people spend in hospital after suffering a traumatic subarachnoid brain heamoraage?

[Chelt83]

I know it differs with the severity and the individual, but I don't think I got the care I should've got when I suffered from mine.

[Jaec]

8 weeks

[clarry in reply to Jaec]

I spent6 months in hospital mainly in a coma after having a avm removed which hemorraged during the op had 3 months plus rehab so I can't fault the care and aftercare

[Chelt83 in reply to clarry]

I'm sorry to hear that clarry, sounds really serious. I'm glad the care you received was good though and hope you are ok now. 😁

[cat3]

Mine was a spontaneous SAH and my stay was 2 months (3 weeks in ICU: 2 in recovery and 3 in rehab.

Why do you feel your care was lacking Chelta ? x

[Chelt83 in reply to cat3]

I don't think they kept me in for long enough, even though the bleed wasn't that severe, I would've thought for observation etc it would have been longer. They didn't keep my head elevated, didn't show me where the toilet was, let alone helping me get to it. They were rude throughout my whole time and there was a total lack of care. They didn't tell me anything about the subarachnoid heamarrohage, apart from the fact it was a bleed. No advice when I was discharged at all, literally said to me, 'you can go now' they didn't put my referral through to the brain injury clinic, I had to do that myself, which prolonged everything. My GP was fuming when I told him what happened.

[cat3 in reply to Chelt83]

Everyone seems to have different accounts of their care ; some good, some not. I had excellent hospital treatment throughout but I, like many others, was shocked by the discrepancy between that care and the complete lack of aftercare (apart from pre-arranged MRIs and a 3 month check up with my surgeon).

Your comment about keeping the head elevated rang a bell. I've no memory of it, but my family told me I complained constantly about lying flat but they were assured it was vital after the coiling procedure. But I was obviously very lucky as I can't think of anything the staff could have done better.

I was monitored day and night until discharge. Rehab included a walk round the block with two nurses, supervised showering/bathing, cognitive testing and supervision whilst I made egg on toast and tea for myself. Just before discharge I was accompanied by the OT to the hospital café and given money (requiring counting) to buy us both coffee & cake. And I was allowed home for one day (with family member) prior to discharge so I could report back how I felt about a permanent return.

As I recount all this Chelt it does now feel like I stayed in a luxury hotel ; even the food was 5 star. So it's really sad that your treatment was so polarised to mine.

But my GP was clueless and dismissive. When I saw her afterwards about an unrelated problem she didn't even ask how I was getting on. But I managed to secure a referral back to the original neuro team for pituitary symptoms and now see them every 12 months.

Can I ask where about you are m'dear ? I'm in NW England and though it isn't my local hospital I was transferred to Salford Royal, Manchester. x

[Chelt83 in reply to cat3]

I think you may be correct about the head not being elevated actually, obviously the first thing I read wasn't correct. I was in Gloucester Royal, it was more about the lack of information on discharge and lack of referral more than anything really. There were a lot more things about how they treated me, or didn't treat me when I was in there as well, but too long to go into. They didn't do any assessments for my cognitive ability either, although I can remember the first 24 hours or longer anyway.

[cat3 in reply to Chelt83]

All sounds quite lax ; sorry you had such a negative experience Chelt. I hope you're now getting help from the BI clinic, and remember we're always here...…….. x

[neilhapgood]

I was in for 3 weeks but 10 days of that was induced coma then surgery. I put together a website with info that helped me with my recovery that might have something of interest to you braininjuryftp.com

[Chelt83 in reply to neilhapgood]

Thanks for your reply, I'll have a look at the website later when I'm not so tired. I'm literally trying everything and anything to help with my recovery.

[Kavib]

I spent a total of 7 weeks in hospital however I had 4 operations so it really depends on whether they can treat it instantly or they need to monitor it x

[Chelt83]

Thanks for your reply Kavib, it seems that i was lucky in one sense that i had such a short stay in hospital and didn't have to have an operation. I'm still getting all of the recovery symptoms, but it could've been a lot worse for me. All because I got assaulted and robbed of my phone as well. I hope you have recovered well enough. 😁

[Wazza84]

Hiya Chelt83

I spent 387 days in hospital.. first 4 month in critical care & 8 month in a rehabilitation hospital.

I suffered from a brain bleed due to an AVM in the brainstem.

🙂

[Tim_I_am]

I was in less than a week as in a different hospital to where I lived. Then discharged no follow up, just to my regular gp.

Turned out nearly a year down the line I should have had rehab, but by the time I was sent there they told me there was nothing they could help with.

Another 23 days and I’ve reached my two year milestone.

I hope your recovery goes well.

[WinB]

See we all differ Chelt, If worried always see Doc and ask him the question better to be safe than sorry. I was 4 months in Kings College London then moved to Maidstone hospital. There the OT's said to my Hubby and Daughter, I will never get better and to put me in a home (Cheers OT's) I went home with hubby and they noticed all I did was sleep went back to Surgeon at Kings college and they said I had Hydrocephalus. I had shunt fitted and awoke and sang to the nurse who was looking after my cross for me. The only thing I remember was the Nurse and a song, got home pounced on by dogs and I have never looked back XX If hubby had listened to Maidstone OT's I'd be an old dear sitting in a home with water on the brain!!! Good luck Chelt and if worried see Doc xxx Now I laugh when my Daughter tells me I called OT's witches, I knew they didn't like me lol xxxxx

[Flumptious]

I got my TBI in 2005, although I don't think there was any bleeding (but I do not know!). I was in a coma for a couple of weeks, then I was in a Rehabilitation ward in the hospital, for eight months.

[michael-Noel]

Hi I had a subarachnoid 2 bleeds 10 days in hospital had ensovascular coils 6 hour opp 7 month rehab at home back in 2015 recovered now some issue with mood and slight short term memory issues otherwise all is good and the Leeds LGI really looked after me I owe them my life

[Hidden]

Hi - like you say - we are all different. I was diagnosed in one hospital - transferred to Neuro at one of the London Hospitals for a week (ICU for 3 days and then the general neuro ward) and on discharge was referred on to my local Neuro hospital SRI for follow up. I cant fault the care I was given. I was not referred on for re-hab or to a brain injury clinic, but given that my SAH was classed as (1) - the least severe then I am sure that was the reason. I still have minor issues nearly two years on - but considering the possible outcomes I feel very positive. The best sources of help I found were Headway and the Brain and Spine Foundation.

[WinB]

2009 I passed out. 4 months in Kings College with SAH4, ventriculitis, UTI and then Sepsis ..Moved to Maidstone hospital was sure they were trying to hurt me O.T.'s 4/6 weeks ..Then back to Kings in 2010 for shunt to be fitted 3 days xxxx See none I remember until shunt was in xxx

[Danger19]

Hello there, I fell down my stairs at home. It caused massive traumatic brain injury, broke the base and right side of the skull, subarachnoid haemorrhage, and blood clots. I stayed in Addenbrookes Hospital for 9 wks but my improvement was almost instant. I was walking, talking, had perfect memory within 3 days of waking from my coma.

I hope this helps to answer your question.

Take care

Vikki