Idiopathic Intracranial Hypertension (IIH) - Headway


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Idiopathic Intracranial Hypertension (IIH)

Madiepetsana profile image

I have discovered that I suffer from Idiopathic Intracranial Hypertension (IIH) and had to have a vp shunt inserted. Instead of summing it up as brain problem, can we be specific so as to channel the right support and treatment? I have no blood pressure issues but Cerebral Spinal Fluid pressure problems. WE HAVE TO KNOW ABOUT THE CAUSE OF OUR HEALTH PROBLEMS INSTEAD OF SUMMATIONS.

4 Replies

Can I ask what symptoms you had.

Headaches, Drowsiness, Vomiting, Sensivity to light, Seizures and Dizziness were the symptoms I had. Do not rule out fatigue...

Jod13 profile image
Jod13 in reply to Madiepetsana

Madiepetsana ive also been diagnosed with IIH in January. No shunt but 2 lumbar punctures, the last one I’m not really recovering from. I’ve lost 13kg since Jan and still working hard to lose the last 18kg. Apparently I was overweight which is a huge contributor to IIH. ANyway, best of luck with your treatment!

Madiepetsana profile image
Madiepetsana in reply to Jod13

Hi Jod13. Hope you are doing fine with your treatment so far. I have had no problems since then and have discovered that taking things easy helps. Keep well!

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