Hi I’ve posted here previously in despair, in the middle of the night , in darkest hours , no one to talk to and always found kindness here and positivity and hope.
He’s working hard at physio...balance, side steps, ball games, jenga. He feels positive. He has hope for the future.
So must share that now we seem to have more good days than bad days. Today we ve walked 3 k round the park. Drank coffee in the autumn sunshine with friends, laughed, went shopping and life was good. We were happy. We felt normal.
The headaches have nt gone away, the balance is work in progress, the anxiety is getting less. Still need afternoon sleeps . But right now life is good.
Sure we ll continue to have downs, more challenges, but just to say through this group ,educating me, sharing with me ,supporting me/ us and giving us hope , things are really better . One day at a time.
Thankyou 😘😘
Written by
Charente
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Hi Anne. Poignant and positive photo of your man ; I empathise with being a BI survivor and (recently) diagnosed with AFib. The good days for us are extraordinarily good and definitely worth sharing !
Onwards and upwards m'love with, hopefully, many more good days ahead.
before my wife and i go anywhere for coffee she has to do checks for noise and and children, these woul.d be anger outbursts for me. the walk is good and also the cause of your husbands fatigue.
however, with bi, if he has to concentrate for a period of time, do something physical this will cause fatigue. our fatigue is different to a person who hasnt had a bi.
i snooze for an hour or so ( if the wifes working then its longer about 2 ).
having a good gp helps, ive seen the same one since my bi, ive insisted on it, although ive explained to him he ll never understand because he doesnt have a bi, he listens to what ive got to say and we sort things out between us, its the same with the psychiatrist.
i dont know if you go to a headway group near you, they run monthly, great for your hubby because he ll meet people in the same boat and youll meet the darlings who look after us.
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