2 Brain Bleeds left me struggling

[Squire14]

Hi, I had 2 brain bleeds, Haemorrhages, in August 2016 after a fall down concrete stairs. After surgery, I awoke with no clue of where I was, or what happened. Apparently my family were told I might not make it, but hey, I live to fight another day. My main concerns are talking, concentration, memory and behaviour. The best I got was, it could fade or be permanent. It’s looking permanent. Is anyone else on the same page as me?

I find it hard to pronounce certain words, I lost my speech completely soon after surgery. I had to learn to walk and talk again. My writing is still a little erratic. Thoughts please?

[Kirk5w7]

Pasr for the course im afraid Squire. With brain injury everybody’s recovery is different in terms of exactly what is affected. But the common issues we all face are balance and fatigue.

What you have to do is keep on practising those thongs you find most difficult. I had my daughter in law, a primary school teacher at the time, bring me the sheets that they use to teach children how to write and i used to use big chunky crayons because i couldnt hold a pen or pencil to practice the strokes needed to learn to write. Happy Days!!

Janet xxx

[Squire14 in reply to Kirk5w7]

Thanks for your reply, I guess I’m just impatient.🤪X

[Cornishwaves247]

Hi Squire14, I had a rebleed in June 2017 first bleed was October 2015. I'm currently learning to walk independently, it's there but my balance is poor... I can't do it yet. I've been struggling with it to. Nine months of no independent walking, poor balance an inner body sway/shake/bounce (not sure how to explain it) bouncing around brain and funky vision. I can't wait for something to give and return as I don't believe they will not! I practice everyday. How long did it take for your walking to become good again? All you can do it keep practising really, that's all I do.. nobody has any answers or advice as everyone is so different in the recovery process

[Squire14 in reply to Cornishwaves247]

I’m walking pretty good at the moment, still have the odd dizzy turn. Sorry to hear it’s taking so long for you.

I suppose we can only keep going forward 😐

[Madiepetsana in reply to Squire14]

Let us do this....after my SAH eighteen years ago, I am still holding on. Let us hold on and relearn what we need to learn anew and never limit ourselves. #Teambleeds and going strong....we can do it!

[cat3]

Hi Squire. I suppose if you accept things as they are whilst continuing to practice skills such as writing, dexterity etc., you'll probably see more improvements, but minus the frustration which results from impatience.

These things won't be rushed anyway, but I found that once I stopped being bloody-minded about proving I wouldn't be beaten and quietly went about practising memory exercises (daily crosswords), coordination 'Catch' and Goal-keeping with my grandson, and online Solitaire for dexterity, I really did improve to a much more acceptable level.

I think I reached my peak at the 3 year point so, at 18 months, there's plenty of hope for you yet ! I still can't walk miles like I used to and haven't beaten my balance issues, but life's ok............

Best wishes, Cat x

[Squire14 in reply to cat3]

Thanks for your reply, makes me more hopeful, but, I won’t be relying on it (Just incase!)

Looks like it’s gonna be a long journey. I hope you return to your old self soon x

[BeckyT77]

Hi. My son had an accident and suffered similar injuries amd has the same problems with speech and memory. Tired all the time too. He was twelve when it happened. Almost 15 now. We just keep plodding on. There are some improvements. And some not so good. But hes here. And thats the main thing. I do believe he will keep improving. And you will too probably not as quick as you would like to. Stay strong 😊

[Mufc]

I got tbi from car accident in 1988 with me daughter and my husband. They are both good thank heavens. I was unconscious for 3 months then went to rehab hospital then 24 hour livein care at home. I now have Physio to help my walking and balance. No care at home.

I cannot drive so I need someone to do that and shopping. I am unpleasant with my talking so I need help with that and writing is not elegable. I use the computer to send messages. My husband writes cards etc and has helped me but due to my mood he is now divorcing me. So I will need some assistance again. But I am a very strong person so I will continue to survive. Not happy but will continue to cope. We have to cope with what ever life throws at us and be grateful we are alive😊

Be positive.

Mufc

[Cj-195]

Hi squire14, I'm the same. 2014 I still struggling to talk and more. Look for true help. Good luck. 👍

[Madiepetsana in reply to Cj-195]

Good luck to you too, Cj-195. You guys give me comfort that I am in right track