I would love your thoughts

[Mickdondan]

My son has an ABI and suffers from tremors in his legs an upper body. He recently said his eyes were experiencing problems with vision as in objects moving so he went for an eye test. His vision is fine but during testing he said his eyes were shaking an told the optician. She looked An said she couldn’t see any movement but his lips were twitching. Should we leave this for now or contact his Neurologist? I feel like it’s not urgent enough and think he should wait till his March appointment.

[Hidden]

I would phone the neurologists secretary and explain it all to her - she can talk to him and he can decided if he needs to bring the appointment forward. Failing that, see your doctor, it must be dealt with before March in case there is anything really wrong.

[Mickdondan in reply to Hidden]

Thank you. I just feel like we might look like are fussing over nothing

[Kirk5w7]

That’s a long time to wait.

Unfortunately in this country routine vision therapy is not offered. It is however every useful as in many brain injuries the eyes, ears and brain have their connectivity disrupted and much can be done to reconnect these with the correct assessment and exercises.

I spent nearly 2 years trying to convince my GP/ and had a number of tests done on my eyesight, all saying my vision was in normal parameters. But, it was different and I knew it.

So I sought out a vision therapist, you will need to search the internet and I found one close enough to where I lived.

I had to pay for the assessment and following treatments, but it was invaluable and worth every penny. They confirmed all the issues I felt I had and taught me how to minimise these, giving me so much more confidence.

Search the internet and gather information for yourself, it is not common in this country but can be found.

Best wishes

Janet x

[charlieab]

Hi Mickdondan

I have pretty crazy vision now, with objects appearing to shimmer and all other kinds of nonsense. Ive asked for an appointment with a neuro-opthalmolgist (the optician and opthalmologist not having been able to say what was going on). Neuro-opthalmologist might make sense for your son too. That or opthalmologist. But I agree with tyhe other posts. Eyesight is too important not to address it quickly if posisble.

Best of luck.

R

[Mickdondan in reply to charlieab]

Thanks I will get on with looking into this

[cat3]

If in doubt please contact your son's neurologist ; Three months is too long to wait if there's a problem to be addressed. If not there's nothing lost. Best wishes, Cat. x

[RogerCMerriman]

It’s certainly something that they should know, possibly of use to the Physio if he has one?

The Physio at the rehab session found my eyes wheren’t tracking though I hadn’t noticed and this was apparently of interest. So the bare minimum I’d make sure you pass On this information.

idal speculation but is this something new ie the movement, or something he’s just noticed, some quite big things can hide for a while in my experience!