I haven't written anything for sometime about my son and his hypoxic brain injury he had 6 months ago. He has come such a long way and surprised us all - although his therapists still insist that he has no mental capacity especially on his safety. He has half an hour of physio and half an hour occupational therapy Monday to Friday and he has SLT once a week. the rest of the time he sits in a chair with a HCA sitting with him watching him. As a family we feel that he would benefit from more physio and occupation therapy, but that is all that he is allocated as there are 34 other patients on the rehab ward. NHS funding was applied for continuing care and this has been refused. The next course is social services and although he has a really good care manager who has spoken to him and both her and her colleague agreed that he does have mental capacity.
He has been on Lorazepam which made him like a Zombie and caused really bad ataxia and then he was put on Mirtazepam which also made him like a zombie and he even stopped talking out loud and could only whisper on both occasions we have asked that this medication be stopped and eventually this was cut down and stopped although he is still on 15mg of the Mirtazepam.
I know that my son switches off when any of the therapists ask him questions and when I ask him why he does this he says they are idiots and what is the point they don't take any notice of him anyway. I know what he means as there was an occasion a few months ago when the occupational therapist was going to take him into the potting shed and he tried to put my son's jacket on and he couldn't and then told us that we had to get him a new jacket as he couldn't get it on and my son became very agitated (the jacket was ok and I helped him put it on two days after with no problems)
I feel very scared at the moment because they are saying that he will have to go into a nursing home or a care home where he will be safe and they are planning a best interest meeting soon. I keep saying to these therapists and his Consultant Physiologist that he doesn't have dementia. or learning difficulties or mental health issues - He has a brain injury and a care home is not the best place for him.
His partner wants him home and SS will be able to send in some carers to help and we are quite happy to pay for private neuro physiotherapy. As him mother I think he will thrive a lot more once he is in his own home and there is enough family close by to help out.
Can these people force him into a nursing/care home ??