Follow up care.: Hi all, I've received a letter... - Headway

Headway

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Follow up care.

Debra1967 profile image
18 Replies

Hi all,

I've received a letter today from the Critical care directorate where I was treated offering me a 'follow up appointment'

I will be able to speak to a neuro nurse specialist and a consultant about my care at the hospital, how I'm coping, any issues or problems I'm facing etc. And if necessary they will refer to a psychologist and psychiatrist.

This is new, and has never been offered before at this hospital.

Maybe, just maybe, the aftermath and aftercare for people who have suffered a TBI is finally being taken more seriously.

I'm quite looking forward to going. :)

Just wondering if anyone else has been to a similar appointment at their hospital?

Take care.

Deb. x

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Debra1967 profile image
Debra1967
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18 Replies
swedishblue profile image
swedishblue

Wow how great is that!! I remember at last year's (November) SAH Conference In London, so many people in the audience (patients and carers) really kicked up stink about the complete lack of follow up care available to brain injured. The 'Expert' panel of Speakers made assurances they would take immediate steps to ensure patients/carer's received quick adequate aftercare. I think they really meant it too!! Here just might be the proof!!

Elenor3 profile image
Elenor3

Hi,

Yes, I've had fantastic support from a neuropsychologist. Coping strategies shown and reassurance about why some things are happening have been invaluable. Also support with post trauma issues have helped. I hope you find it helpful :)

swedishblue profile image
swedishblue in reply to Elenor3

Hey Ellie, I received today in the post a referral to see a Neuro-psychologist at the beginning of February. I'm really looking forward to it!! ;-)

Debra1967 profile image
Debra1967 in reply to Elenor3

That's really good to hear. I hope so too. At least they'll be able to answer some questions for me :)

swedishblue profile image
swedishblue

What hospital were you treated at?

Elenor3 profile image
Elenor3 in reply to swedishblue

I've sent you a message with the details :)

swedishblue profile image
swedishblue in reply to Elenor3

that's hilarious Ellie, that question was meant for Debs! nevermind, I'm still interested!! haha!

Elenor3 profile image
Elenor3 in reply to swedishblue

Ha ha :) I'm not quite the full shilling tonight (or any night for that matter :) )

swedishblue profile image
swedishblue

Debs, where in the country are you? Which hospital were treated at?

Debra1967 profile image
Debra1967 in reply to swedishblue

I'm in South Wales, was treated at the University hospital of Wales (Heath) in Cardiff.

Silmarillion profile image
Silmarillion

How cool is that. I wasn't offered anything like that and so many questions remain unanswered

Debra1967 profile image
Debra1967 in reply to Silmarillion

This is the first time the service has been offered at this hospital, I'd never heard of anything like it before. Hope it gets rolled out across the country as I'm sure it would be beneficial to many people.

Blim profile image
Blim

This sounds really enlightened. I've never heard of anything like this before. I hope it is helpful.

Debra1967 profile image
Debra1967 in reply to Blim

I haven't either. Hopefully if it gets good feedback other hospitals will follow suit.

TBI2015 profile image
TBI2015

Well that's a first, hopefully change will follow - let us know how it goes 🙂

Debra1967 profile image
Debra1967 in reply to TBI2015

I will do. It's not until February but I'll keep you posted.

MagicMartha profile image
MagicMartha

Best of luck Debra. It sounds like this might be a great thing for you. Keep us posted.

Namaste'. mm

Debra1967 profile image
Debra1967 in reply to MagicMartha

Thank you :)

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