Hi all: Just joined the community, not really sure... - Headway

Headway

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Hi all

stevenshaughton profile image
10 Replies

Just joined the community, not really sure why. I suffered a brain injury in 2000. Was in a bad way, am always recovering one way or another. Any questions are welcome, but beware, I have no memory & filter (I can be taken the wrong way).

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stevenshaughton profile image
stevenshaughton
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10 Replies

Hi welcome

I can assure you that we are a friendly lot and we will try our best to help you when you need help just ask

A useful resource is headway itself

Sorry my reply is short and apologies if comes across the wrong way but my brain does not want to get into gear this evening

Best wishes

randomphantoms profile image
randomphantoms

Hi Steven and welcome.

As film says we will help when we can .

Join in as and when you feel like it.

Love n hugs

Xoxo

lcd8 profile image
lcd8

HI Steven. Please could I ask for more detail about your brain injury and recovery?

stevenshaughton profile image
stevenshaughton in reply to lcd8

Icd8,

Hope you are well.

Of course you can ask. I was in a RTA. I was in the bad of a Ford Fiesta & the driver turned on a full green (not a filter). The car was side swiped, went into a spin and ended up on the side of the road & I was 'found' on the other side of the road. I suffered a severe head/brain injury. I spent 4 months in one hospital & 4 months in another. I was 3 months unable to say anything, now it's getting me to shut up or stay on topic that's a problem. I left hospital in a wheelchair. My parents employed a case manager who, in turn, employed a team of neurogist therapists who worked with me for approx 3 years to get me as far as they could. The team included a neurophysio, a neuropsychologist, an neuro OT & a speech & language therapist. That, plus my determination/stubbornness, I have continued to get better. Apparently, there were 2 ways of my improvement - the first way was to get better quickly & that would be it, the second way, which I chose (quite unassumingly), was to get better gradually. That way, I will continue to improve.

My brain injury is widespread, but mainly frontal lobe.

Hope this answers your question.

in reply to stevenshaughton

Hello yes, I am still recovering 20 years after severe head injury, frontal lobe damage from an RTA- I was a pedestrian so landed on my head after a car hit me. Just found out I've been walking around with damaged ankles which I've never been aware of but it's given me 10 years of back-ache which I thought was sciatica but no. Thankfully I went for acupuncture yesterday and found that out. So now I'm on another path of therapy!

I am on that slow gradual path of healing as well!

Kati3 profile image
Kati3

Hello Steven,

Welcome to the site. I'm Katie, I had a bike accident in 1999 when i suffered my tbi. Sounds like you have done amazing, great determination.

Nice to meet you.

Katie

lcd8 profile image
lcd8

Thanks for sharing. Sounds like you have been through a lot. But fingers crossed your improvements will continue and one day all this might seem like a bad dream. My BI is down to a medical condition. I was born with it although no one knew that until my mid-20s when I suffered some symptoms. I'm lucky really as apart from the occasional surgery and knowledge I have it it doesn't cause me too much grief. Last year though it caused a stroke mimic and I needed help from some of the professionals you mention above. They were amazing though and helped me get back to 'normal' (whatever that is). My BI is in the Cerebellum. Best wishes.

iforget profile image
iforget

Hi Steven...

You are in good company here ;)

You said "beware I have no memory and filter (I can be taken the wrong way). " and I think many of us can identify with that

I have no short term memory myself... and I can't help but wonder if you will remember you have joined and/or will remember to come back to the forum...I did not at first ( I joined loads of things and then totally forgot seconds later) but now I have my settings so that if I post I am notified of replies...it is the only way I know to come back here .

stevenshaughton profile image
stevenshaughton in reply to iforget

Thanks for the welcome.

Hopefully, I'll be on here almost on a daily basis so I hope that it'll become a way of life.

in reply to stevenshaughton

Short term memory and filter are massive problems for me also- I forgot to say I stopped breathing when head hit the ground and was on ventilator for 3 days and unconscious for 8.. So they tell me!

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