gabimou in reply to samanthaash1993

I get those as well but somehow try to manage it, a different post I did about Keppra I called it "my bitch flip switch".....

I write a daily diary as well for my symptoms and the change in the weather

doe's not help with my weird feelings....

Mine is partial seizures and some times feels like I'm just going to drop or legs going to give way horrible feeling.

Mandy(**,)

steve55 in reply to samanthaash1993

samanthaash1993 im on epilim but mines used as a mood stabiliser.

it was that or carbamazapine

gabimou in reply to steve55

Hi Steve,

it's like something that just makes you feel weird and you think this is it I'm

just going to drop very difficult to explain.

It starts sometimes in the neck and creeps up the back of my head with a tight pushing sensation on my right side which is where I had the craniotomy and mastoidectomy.

The weather effects me as well, if it's cold or windy the best way to describe it is like there is a hole(which there is of course) and it goes straight through the head making me feel like I'm drunk.

You don't see the dents in my head unless you was to look really close, as you can see doesn't stop me from having my hair short and shaved on the side.....lol.....

I had an EEG last year which showed abnormal activity and I am due to go for another one possibly next month to see the difference from before starting the meds to now taking meds.

Mandy(**,)

gabimou in reply to B_S_A

Hi Ben,

Already I'm feeling different going back to 2x 1000mg a day better than the higher dose.

Each time I visit my neurologist I let him know what's been happening and I write a daily diary which he keeps in my med folder so its trying to find the right dosage and I take 0.5mg Clonotril at night which I have been doing since the beginning but I didn't always take it , so have started to again at night.

Also when I was changing my dosages the neurologist did say I would probably have some "blips" at first but this last few I did not like at all.

So fingers crossed and lets see the results of the next EEG when I go sometime next month....

Mandy(**,)

gabimou in reply to MedicalAngel

Hi MedicalAngel,

just been going through some of my old posts and noticed I didn't reply back to yours.

I have the same symptoms as well and have just distanced myself from people especially at work.

The main reason at work is no one really understands and to be truthful I really don't want to discuss how I feel everyday.

I'm at that stage I don't give a monkeys what they say either because they will still make assumptions even if they really knew how I suffer everyday, so its best I keep my distance otherwise my filter brain to mouth takes over.

I work in an airport so its the dreaded shiftwork and it really puts me out of sync and like you say fatigue takes over big time.....then I can go a few days no problem then" boom" I want to walk out of my job and a few times have actually nearly done it.

My recent EEG has shown that the meds have helped because my brain activity is showing totally different to the one I had just before I started my meds....

Mandy