Deprakine/keppra

[gabimou]

Back in beginning of Jan neuro dr prescribed me deprakine 2 x 500 mg as my symptoms sounded like partial seizures so he adv me to have an EEG and visit a neurologist.

Anyway 2 weeks ago did the EEG and was showing right side abnormalities(operation side) so neurologist put me on Keppra 2 x 500mg a day for what could be partial seizures but I'm feeling like they are not working as good as the deprakine so wanted to know if anyone else has come across this I understand as well everyone is different and you have to keep trying different doses.

I will be contacting my neurologist as he did say to call him any time !!!

I am just curious to know other peoples stories.

[sporan]

Hi gabimou,

I have complex partials from left medial lobe lesion and take Keppra 1250 mg twice daily which helped slightly and then was put on Lamactil in adition to the Keppra and am now up to 150 mg twice daily.

With each change in dosage I have had a mild improvement which then slowly disapears over about a month, although the last change in the Lamactil has held improvement for approx 2 months but now unfortunately slid back to before. I think the reasons for the difficult control in my case is the slow growing nature of the lesion.

There was quite a delay between starting each medication and any sign of change in symptoms but they did come and the dosage adjusted as things slid back.

I have no experience of Deprakine so can't comment on the difference. You don't say how long you've been on the Keppra but as I say it takes a while to take effect and some adjustment to dose may be needed.

At the end of the day the best advice really is to contact your neurologist about an appointment or write to him explaining any problems you are having and he may be able to give advice or arrange an early appointment.

Best regards

Sporan

[cat3]

Just wanted to say hello Gabimou. I'm lucky enough to have avoided seizures, so can't offer any helpful comments I'm afraid.

Lovely photo of you, and nice to see your smiling face at last. Take care m'dear and I hope you'll find the best treatment as soon as possible.

All best wishes, Love Cat xx

[gabimou in reply to cat3]

Hi Cat,

I've been having funny turns ever since the op which is nearly coming upto 2 years its flown past.My outpatient Neuro Dr did say all along it sounded like partial seizures but since going to a neurologist a few weeks back and getting an EEG which actually shows abnormal activity(the bstard....hahhaha).

So going to see how things go and how I get on, some days are ok ,others really strange so now need to figure out what sets them off.

Some days its like being drunk(no alcohol involved) which I actually think could be due to my ear op which was a year ago this week and the two things combined keep me feeling like I'm going crazy sometimes...but still kicking and screaming(not literally....lol)...

[cat3 in reply to gabimou]

I know how ear problems alone can cause distress and dizziness so with the seizures it could be a nightmare combination.

I hope sincerely that the doctors will find the right combination and dosage for you Mandy so you can enjoy some freedom from this rotten condition.

Please stay in touch ; it's always lovely to hear from you, despite the circumstances !!

Love Cat xx

[cat3]

I know how ear problems alone can cause distress and dizziness so with the seizures it could be a nightmare combination.

I hope sincerely that the doctors will find the right combination and dosage for you Mandy so you can enjoy some freedom from this rotten condition.

Please stay in touch ; it's always lovely to hear from you, despite the circumstances !!

Love Cat xx

[B_S_A]

Getting my epilepsy medication right was tough, it's just trial and error I think.

I'm on 150mg Lamotragine, and 250mg Keppra, both twice a day, and it works fine for me. Not too bad on side-effects either.

But I've been all over the place with these meds to get them right, I hope you get there soon,