Hope you are ok today?
Does anyone know, or point me in the right direction to find out what multiple high intensity signal areas mean on an MRI scan? These were seen following my subdural bleed ten months ago on my scan. Following being run over, I started to have partial seizures on my right (alot) which relates to the subdural on my left. Fluroscent lights/flickering sets my seizures off, but not all bright lights. I have seen some improvements to my seizures with anti epileptics (Keppra - horrible side effects), but still very dehbilitated as can't go any where with fluroscent lights for any period of time, which renders me virtually house bound. The more seizures I have, the more tired I am.
When I was an inpatient we had to complain about one doctor and their care of me. You complain about one doctor, you complain about them all. Hospital will not release my notes after my solicitor has tried for over five months. No one will give me care. They ignore all the symptoms above. We repeately tell them about the fluroscent light issues, my seizures relating to my damaged side, by loss of lanaguage control when I wake in the morning, when my environment is too nosiy and in the evening shortly before I take my medication dose. I am also so, so tired sleep for most of day and night. I also have problems with body temperature control All completed ignored, no proper patient history recorded.
Third neurologists down the line tells me a subdural bleed is nothing to do with the brain! I may look stupid, but I really am not oh and I have been told all my symptoms are psychological with no reference to the fact that I landed on my head at 35mph and only since them am I like this. I recognise though that some of my issues are pshycholgical but not all, otherwise my scans persumably would be clear. They make no reference to my abnormal scans. I only get this attitude as soon as they talk to the hospital we complained about and who haven't released my notes. I know they talk to each other as when I went for a second opnion, the neurologists was copying in the orginal neurologists to all the letters he wrote. He then started sending letters to him directly and back the other way.They all insist on having details from the first hospital.
So the plan is try and piece it all together and go armed with evidence that all is not right. Tens months on, I am still not back at work and have no quality of life as I am too tired to do anything meaniful. I would like a life, but without any help, I do not know how I am going to do this.
One saving grace is my GP is brillaint and does listen. She has referred me to a neuro psychologists, not sure what will happen there and not sure how I am going to sort these seizures out.
So I have rambled away, sorry, but need advice on how to get care and what do multiple high intensity signal areas on an MRI mean? They said in hospital that this maybe where my seizures were coming from. My seizures are worse when I am laying on my back. I would be very grateful for any advice.
Thank you very much.