Treatment: Last night I put steak and kidney on my... - Headway

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BaronC profile image
30 Replies

Last night I put steak and kidney on my left earlobe and chicken and mushroom on my right earlobe.

It's pioneering treatment

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BaronC profile image
BaronC
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30 Replies
StrawberryCream profile image
StrawberryCream

what!?!?!?!?

angelite profile image
angelite in reply toStrawberryCream

Pie on ear ing treatment.Took me a bit to get this ! x

StrawberryCream profile image
StrawberryCream in reply toangelite

Thank you Angelite! I really have a problem with understanding and working out anything that is remotely a puzzle. Mind you I struggle to understand straight forward instructions either!

Kirk5w7 profile image
Kirk5w7

Ha ha Andy, you must be bored!!!!

What a terrible joke :-D. Janet xx

yeah whats the point

moo196 profile image
moo196

Very funny - though it took me a couple of minutes to " get it " !! ...... :-)

in reply tomoo196

me derr, sorry can't get it. Is it good? Please tell!

moo196 profile image
moo196 in reply to

Pie-0n-ear ring.......... :-)

Was it a christmas cracker joke I wonder ?

BaronC profile image
BaronC in reply tomoo196

How dare you!!! :) I made it up myself. I have a talent for humourless crap

in reply tomoo196

Ohhhh, thanks! Derrr me.

cat3 profile image
cat3

A touch of sarcastic parody methinks. But of what Mr N. ?? :o

BaronC profile image
BaronC in reply tocat3

As has been pointed out (correctly) I was bored :D

Danslatete profile image
Danslatete

Lol! Took a while for the penny to drop but it made me giggle when it did :)

Matt2584 profile image
Matt2584

Nice one :).

You made that up? That's why I haven't heard it before then :).

Why are there no aspirins in the jungle?

Cos the parrots eat them all... (paracetamol) :).

in reply toMatt2584

Blimey: you're SHARP (that means clever/funny in my book)! You've got many great talents Matt!

Matt2584 profile image
Matt2584 in reply to

Thanks Muddled. For the record though, I did not make that joke up though. I stole that joke from a tv show :). I'm not too hot with jokes much.

On another note, you are from France which is where ATOS come from. Are they still active in France?

They came over to UK for a while and were cutting peoples benefits. I don't understand them though, they are called 'ATOS healthcare' and they obviously do not give a crap about people's health. More like their own health. "ATOS healthcare... Not your health but mine". Anyway, thanks to all the protesting, we got rid of them. I'd rather vandelise the name and call them 'A bunch of TOSsers', pardon the language but they do make me angry.

in reply toMatt2584

Doesn't matter where you borrowed from, on TV so in public domain!

I don't understand why our GPs/treating doctors can't say (to DWP/social services) what help we need, does DWP think they'd tell lies?! OUR docs know us best, yes, sometimes real independence is good but SUCH a waste of money: cut out all the forms, stress of 'assessments' by people not experts in rehab/ABI...

Is ATOS from France? Must look. In Sussex (and all UK?) we had EDF = the french electricity company = they use LOADS of nuclear which I hate, very scared by.

I copied a comment you wrote in reply some days ago but got too scrambled trying to think about it, too big = got stuck, sorry. If/when can tackle it will send direct message, if tat's a good idea? Sorry: stressed out with water in kitchen/dangerous house (I think the house is SICK: smells sick!). Carry on your lovely cheer-ups: we APPRECIATE them Matt, thanks.

Matt2584 profile image
Matt2584 in reply to

I do not understand why doctors and gps do not refer their patients to the help we need. After all, we are THEIR patients. Do they not want us to be their patients? Don't become a doctor then, simple as that. You can't become a doctor and not expect to have patients, that is just moronic.

I think that nobody knows you better than yourself. The docs know a lot about the body but that is about it.

Yes, ATOS is a France-based company. I don't know loads about them but I saw a lot of things on Facebook about them cutting benefits, disabled people being treated unfairly by them and how all the protest has got to them and they buggered off :). Good riddance.

Yes, it is OK to send a direct message to me if you find that would be easier :).

I'll try to carry on cheering people up. I don't know how I do it but I shall try :).

in reply toMatt2584

You DO cheer us up though Matt: you write so well and seem to be always cheerful = are you REALLY? Do you hide when you feel low or are you able to ALWAYS be that jolly? Do you ever cry?

I'll go and check ATOS out: only on net though and dunno if true!

Matt2584 profile image
Matt2584 in reply to

Thank you Muddled, that is nice of you to say :).

I write/type pretty well online but my handwriting is crap.

People think it is weird that I can draw well but have poor handwriting. I think it is pretty straightforward though. To handwrite, letters/words are written in one stroke. I do not draw like that though, I sketch in light strokes over and over. At first my right hand might feel kind of shaky but after time when I get into the drawing It stops shking and I feel more confident and put more pressure on the pencil nib.

I am generally mostly cheerful. I can think like an old git and complain about certain things at times but who doesn't and most people in general get on my nerves haha, not the people on here or t my local Headway, of course but strangers can :). I've been told by a few people at my local Headway that I always have a smile on my face, even if it is bent haha (weak muscles in face). I am pretty quiet if I feel kind of low and worthless and I never, ever cry :| haha... I'm joking, I'm not a robot. I do cry but not a lot, I can't really remember when I last cried.

angelite profile image
angelite in reply toMatt2584

LOL ! Now don't beat about the bush,Matt just say what you mean ! ; )

With regards to Atos they allowed me to limp back to work at six months without any physical exam but the lady was rather concerned.I used to clean their offices so knew a lot of them -same nice people that had worked there for years but been taken over and forced to follow new rules-not their fault.Heard a lot of not good stuff.I think its the same for GPs and Hospitals-Management rules and oversees the allotting of the inadequate budget, dictated by government.We all lose : (

On a happier note,there are still some good GP surgeries around-my neighbour's has been fantastic with home visits and organising support for him : )

Matt2584 profile image
Matt2584 in reply toangelite

I have seen a few images on Facebook about ATOS and the cruel things they did. I don't know sometimes if Facebook can also make a mountain out of a molehill with certain subjects, it's kind of hard to determine when you hear other people's point of view. I think they did cut some of my friends' benefits, friends at my local Headway.

One of the ATOS images I saw was showing the CEO of ATOS or spokesperson making some comment andI thought he looked a bit like a frog which was ironic as ATOS are a French firm :).

in reply toMatt2584

Had bit of a look at PIP form = BLIMEY! And no, they still don't ask the right questions for ABIers. And got boggled with form... And NOT right choices, I think? They ask if 'safely' etc. and you're meant to put on a WORST day but I vary so much. And they ask for diary: how you were, I used to write lots but haven't written diary since broke leg/foot in 2010 = the pain stopped me (and learning how to move my body again - had to learn after ABI - but now different again.

DWP (and any of them) should NOT, repeat NOT, have any info about or access to our medical info: it's VERY PRIVATE!!! Sick of them sticking their fat noses into my very private stuff, makes me feel sick, angry and defenceless. NOTHING private any more, told MUST tell them EVERYTHING = IF I 'want' help. Need has nothing to do with it? NOT a choice. People need services (help, money, all of it) and shouldn't have to give out info on the OFF-CHANCE might get help let alone for GETTING it. Horrid rules ad horrid people made them,people who know THEY'D never have to use the systems themselves. Yes, I'm CROSS! But it also makes me fall to bits and cry and makes my brain get its awful burning = scrambles me even more.

CHAOS at home, worst than ever. I know there are more letters I'm meant to try FIND then answer but PILES of stuff on floor and all surfaces = can't. WHY should I have to waste my limited time/energy searching through the piles papers? If I do half an hour of that I'm TIRED and an hour = EXHAUSTED. Then overtired and can do nothing else all day. NOT FAIR. But I know lots are worse than me, doesn't help me do it though!

Way too boggled with all of it. Sick of trying to explain/justify how I am. Been told to try YET AGAIN write a letter, tried3 x and failed coz so much important stuff to put in = about housing. Trub is it relates to EVERYTHING else and endsup spreading too big but I just CAN'T write few bullet points, keep it simple, why does nobody believe me?

Can write bits here coz no pressure to explain all must. Tried DWP in 2013 but totally fell to bits after starting, working days and days, drove myself into the ground on it, neck/back/eyes hurt, collapse, recover, start again, fail, over and over.

SO sick of being TOLD to write when I'm exhausted and in meltdown. Shouldn't ever HAVE to write. I know I write better than talk but SICK SICK of typing, writing, brain SO scrambled, but think nobody believes me.

Sorry: I'm not funny or clever or entertaining - or nice to be around at mo. OVERLOAD.

Matt2584 profile image
Matt2584 in reply to

The overload of stress is understandable.

When you fill in these forms, I pressume you fill them out yourself. I ask because my Mum helps me with forms, I am very lucky there. You say that you always fill the forms in wrong and nobody seems to believe you. Is it that they don't believe you hve a disability? Maybe when you get the forms, you might need help to fill in the forms. Is there an adult services or citezns advice beureau you can visit near to you? You could take the DWP forms to them and ask someone there to help you. I should not think it is easy at all to fill in forms by yourself, I know how stressful they can be just listening to my Mum.

Also, is there a firm/company near you who provide carers? Having a carer would help you immensely I would have thought.

in reply toMatt2584

Nobody helping. Apparently my ABI/disability doesn't exist coz no doc has said and no diagnosis.People who should help don't. Trying charity near me but HATE having to ask, got them here and HATED it coz so embarrassed at my chaos and mess, like to keep private but NEED people to see, try understand coz I look and often sound SO normal.

In haste and EXHAUSTED: all day trying finish letter, it's MASSIVE, can't do bullets, and in real muddled. Cried before stopped for shower and now food. Need to send it but SO scared/stressed. Afraid of everythng now and don't know who to trust.

People keep saying 'you must trust X' then I do and BAM: more 'accidents' and betrayals. Oh 'unlucky' they say but WAY too many, feels like all against me, plotting. And they LAUGH, ha ha, 'between rock & hard place' = funny for THEM? Destroys me. Terrible fears & stress, not my choice or fault but I get told I'm exaggerating/'over-dramatising'. Makes me hate myself.

MUST get letter done and send tomorrow, been at it for 8 months and WORN OUT SICK of trying. It'll never be good enough though and SO scared (about where I live) of ANOTHER move/being homeless. Made me VERY ill. Need it to STOP but have needed that for over 2 years. People are cruel and to laugh is victimisation/bullying. HATE it.

Going try do now but SO tired (not rested/slept today), need RELAX time but can't ever have now or here, same in UK. Spoilt. So sad.

Matt2584 profile image
Matt2584 in reply to

So your doctor and most other people think you're absolutely fine, when you aren't?

A BI, in some cases is a hidden disability.

It sounds like you need a proper assessment by your doctor. To me, it sounds like you have had brief assessments and that is not any good at all. Doctors cannot treat you like that, they must give you a proper assessment so that you are entitled to the help you need.

What was it you want to ask from this charity but hate asking?

in reply toMatt2584

Very tired, sorry:protection, support, surveillance home/me, help at home, advocacy to get all that = PROPER protection, but NO training ABI, tried to tell them but never can really. On with the letter asking for help housing etc. Doctors have treated me like that and still are doing, so trying self to explain what need. Should believe me not need docs to say but oh,that's how it is = they say. SO sick of this. Years down the drain. ILL. Bye.

Matt2584 profile image
Matt2584 in reply to

So from what you say, the docots in France have no recollection of what a BI is. That doesn't make sense really. Doctors should know the ins and outs of the body, every nook and cranny.

In the letter, ask if they have heard of a brain.

And if they know what a brain is, ask them if they know what can happen to a person when there brain has been injured.

Made me laugh..and hungry not had tea yet...not earlobe though lol just the pie!

sporan profile image
sporan

As long as Baron doesn't start to 'wax lyrical' over his pies we should be OK. Would give the crust a nice shine though. ;-) That's one of my 'mince pies' winking lol.

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