Struggling. Need something to give!

[Cornishwaves247]

I'm in month nine now after my bleed and am still struggling! I had a bleed in my cerebellum due to an avm. My eyes have still not corrected, my independent walking is none existent and my balance is poor. I do think when my eyes correct my walking and balance will get better. I'm so frustrated with this recovery now, it's disheartening. I just want my independence back. I want to be able to walk down the street. I know recovery is slow but this is ridiculous

[sca2013]

Yes, very ridiculous and extra frustrating too. For me taking things an hour or day at a time and not getting caught up in where I want to be right now proves to be less frustrating. It's definitely not my first choice, but it helps me deal with the slowwwwww process of it all. I'm sorry you're going through this. Wishing you better days ahead and even today to whatever extent that is possible for you.

[Kirk5w7]

Your eyes may not correct without exercises to help. You need to get to a good optometrist or nhs one at your hospital. Waiting for it to happen is not an option for you.

Janet x

[Kathykathy in reply to Kirk5w7]

Kirk5w I have very significant eye damage since my sah even after 2 eye ops what eye exercises have you been told about I have never been offered any such possibility both nhs and private consultants. very interested to know

[Kirk5w7 in reply to Kathykathy]

Hi Kathy,

I saw a vision therapist who did many exercises with me making my eyes focus separately in many ways ill se if i can find any of them online and forward you tge links.

Janet x

[Kirk5w7 in reply to Kathykathy]

Hi again here is somewhere to start for you, we did all of these and others, some require a minimum of equipment to help

optometrytimes.modernmedici...

Ok

Janet

[cat3]

Yes Jo, I can only repeat what I said a few days ago, that a neuro-optometrist is the way to go. And by trying the 'back door' of approaching your existing practice nurse or neuro dept you could save time as opposed to waiting for a referral from your GP.

Maybe do both and see which one comes through first ! xx

[Kathykathy]

Kirk5 thank you very kind, what part of the country are you in I've never had an eye therapist mentioned to me

[lcd8]

Oh Cornishwaves. So sorry you are struggling. I feel bad for you but unfortunately time is the only remedy. Its a very slow and frustrating process. But you have to believe you will get there and stay as positive as possible.