I was wondering how we, as patients, can campaign for better treatment (or any at all!!!) of post concussion syndrome? From my own experience and reading about others, GPs don't know that there are specialists to refer patients to. We're just told that it will get better, rest and take painkillers.
For my own referral to a neuropsychologist, the NHS waiting list was 16 weeks. Luckily my work will pay for a private appontment. However, my sick pay has run out and I wouldn't be able to survive a further 3 months without pay whilst waiting for treatment.
Who do I write to to highlight this issue? What else can I do to make sure others don't get stuck in a black hole without treatment?