I've had a VP shunt since infancy, which has caused tunnel vision, occasional blindness and changed hearing, lack of awareness and automatic actions, labored breathing, irregular heartbeat, various kinds of seizures, cataplexy and narcopleptic symptoms, blurred and doubled vision, hallucinations, deja vu, anxiety and paranoia, insomnia, falling asleep too quickly, fevers and depression. I may have been experiencing blockage of cerebrospinal fluid drainage because of crooked shunt tubing, which was painful in the left side of my chest, tight on my neck and very highly positioned on my skull.
After an extensive series of seizures in early 2010 from excessive drainage of cerebrospinal fluid that caused me to stop breathing and develop tinnitus as well as experience shunt migration, I have dealt with many forms of pain over the past few years that seem to affect my head most. This includes burning and crushing pressure, searing pain, visual changes that have affected my Bergmeister's Papilla-involuntary shaking of the eyes-fatigue, constant, fluctuating and migrating pressure and aching "pinpoints" in my head-especially where the brain was longest deprived if CSF and mostly crushed during the series of seizures in early 2010-neck snapping, burning and stiffness, facial pain, sensitivity to stimuli, symptoms of neuropathy on either side of head-especially where shunt migrated-and in arms and legs-and tightness and gradual further migration of the shunt tubing. Since the shunt migration, I have grown one inch. I'm wondering if this growth has been the reason behind the tight shunt tubing on my head, chest and collarbone. Sometimes, this tubing has become crooked in my forehead by becoming caught on my collarbone or being repositioned by exercise. The aching in my head has become worse during exercise than it used to be.
I've been told by some people on another website that I may have an aneurysm. I''ve also been told that I could be experiencing cluster headaches. I'm not sure how much longer I'll last-as all people are-but what may come because of what I've dealt with and the problems I've been having scares me.
I'm too dependent to help myself financially, but I could help myself as much as possible at home.
If anybody can relate to what I've described, I'm truly sad that anyone would know what this is like but I'm happy to have found some people who may understand this single world in the universe of perceptions.