Hi im Rachel and its the first time ive ever posted on here and looking forward to being part of this community, thanks Headway for pointing in the direction
I fell down my stairs in June and suffered a bled on the brain and its certainly changed me, I have memory problems and my right leg doesn't feel like its my own (its getting better, but I couldn't move it all in the hospital) and don't feel happy at all. What happened to me is getting me down....a lot!
My family and friends say im improving all the time but I don't feel like my old self at all, not sure they understand.
sorry if it comes across as a moan, it isn't meant to at all.
Written by
RachyBoo
To view profiles and participate in discussions please or .
No, unfortunately even our closest family members don't understand the subtle changes that we experience.
That's why this forum is so re-assuring, we all get it coz we're experiencing it.
For quite a long time I felt detached, like I wasn't in the same world as everyone else, very difficult to explain to others what I meant, however I'm back now, don't know just what caused that but my son, after research, found it is common.
We all see our place in the world differently, and that can be skewed by brain injury, it adds insult to injury doesn't it.
It's made me think that no wonder some babies cry a lot, if they have experienced half of the weird sensations I have!!!!
So, any questions just ask, any moans we don't mind, we don't judge. Xxxxxx Janet
Hi Rachel
Welcome aboard. It is very hard to adapt especially when we discover we can't do things we thought we could.
A funny example - Yesterday I had an assessment and the Dr asked me to close my left eye - embarrassing time to discover I could only close the left and keep the right one open if I did this weird wide mouth frog impression with my mouth
A lot of us find humour is a great way of surviving - but equally this is the place it is safe to be yourself.
Hi Rachel and welcome to this place of sanctuary. To fit in here you need to feel free to have a good moan without apology and a slightly weird, or just plain silly, sense of humour.
There's always someone around when/if you need to talk so don't be afraid of asking, or talking about, absolutely anything you have on your mind.
4/5 months is fairly recent in terms of recovery from a bleed so you can expect some further improvements in time. At this stage I remember it was one step forward & several steps back, but patience is the most important tool & I hope we can help you hold on to that, and with other issues you might have.
Hi and welcome to the forum. Feel free to ask absolutely anything you like, rest assured there'll be someone who can answer. And by the way, moan all you like, it's cathartic and better you do it here than elsewhere.
THANK YOU SO MUCH for all your welcomes and everything you've said. It feels like my humour has disappeared but the frog impression did make me giggle :-0
Cat, its time im not used to at all, never really been poorly in my life before so im so not used to this or the time it takes for the small improvements and Ive no idea whether I will recover to how I used to be or will i just change?
A friend of mine always says positivity needs to be my word of the day, I try to keep thinking of that when I say crazy things!
Obvious humour does it for me now, not so much the subtle, nuanced stuff...I laugh about five minutes after the punchline...not a good look, guffawing apparently at random!
Hi Rachel welcome good to moan rant vent here because people get it in a way even well meaning friends family or medical folks don't. I am all for looking for good but better to express than deny other feelings too. Only useful thing the neurologist said to me was I need 'patience and acceptance as recovery is slow'.
If it seems quiet it's cause some are posting less owing to disappearing posts (which Healthunlocked are investigating) so don't be put off if it takes a while to get a response.
Welcome to our little group. You'll soon feel at home. We're all a bunch of tired, moaning loons with shocking short term memory, permanent headaches and various ailments. But nobody really cares when somebody has a good moan because we ALL understand.
Welcome to the site. I understand totally how you feel. I had my accident in January last year. I was paralyzed on my right side. I am now using everything. My right arm and leg still do not always feel like they belong, and sometimes, my right foot drags a bit. People say I'm improving all the time, but it's hard for me to notice. My sister has made me put photos up on the wall, right from me in a hospital bed, to now, so when I get a bit down, I can look back to where I was at the start. It does help. Good luck, and feel free to write anytime!
I just wish I had found this community whilst I was in Leeds cos I was very alone.
To make matters worse, my best friend of 25 years, the reason why I moved t Leeds in the first place turned out to be a lying horrible nasty piece of scum, basically taking advantage of my niceness & the fact that he knew he was th only one who I could turn to.
He lied to me & blamed my head injury an bipolar, got my family involved & told them terrible things about the way I had been behaving. He even tried to get me committed to save admitting that he had lied & the stupid thing was, it started off as something so trivial, but one lie led to another to another until if he had admitted he had been lying he would look like a total A*****E.
When I say those horrible things about him, maybe it's just me only wanting to see the best in people, but I truly believe he's not a bad person, it just got out of hand cos he's one of those people that will not admit he's wrong & it turns out he will lie through his teeth to prove t people that he is in the right.
Anyway, thanx to everyone & cos it's been 20 years since my accident & I have been through one hell of a lot that you are experiencing now, so I will be there to support everyone in any way that I can ;o)
definitely give BASIC a call! i've been going to the memory class for a few months and some people have been going for years and repeating the course or going when they like.
the more i've been going the more comfortable everyone is with each other and it's really amazing the support you're able to give and receive.
i get counselling and will be starting a course called captain's log soon that will help with concentration. and they have a nice little cafe and a physio that could help you with your leg a bit maybe.
class is every wednesday 2 - 4 and a bunch of new people are expected in the next couple of weeks.
hope you find something that helps! especially locally. luck!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Newbie - Be Gentle
A few finished pictures from Adult Colouring Books
still struggling but today is better than yesterday
So tired of trying so hard
