Brain Aneurysm Awareness UK facebook group - Headway

Headway

10,506 members12,812 posts

Brain Aneurysm Awareness UK facebook group

Alicedenham profile image
9 Replies

Hi, this is to let you know I found a UK based group for people recovering from Brain Aneurysm's on Facebook. Search Facebook for 'Brain Aneurysm Awareness UK'. The administrator is Claire Wren. It is a support group and a place to go when you are feeling a bit low!

Written by
Alicedenham profile image
Alicedenham
To view profiles and participate in discussions please or .
9 Replies
aqua4 profile image
aqua4

Hhi Alice, thank you. K

Balaton52 profile image
Balaton52

Hi Alice thanks for the info.... Good to know there,s something out there for survivors of a aneurysm. Just celebrated my third anniversary and despite the aneu, the resulting fall down stairs, months in hos and bi units beginning to feel as if I am coming to terms with my new lifestyle and actually setting and (usually!!) achieving my own daily goals! Tnks again, take care too.

gj124 profile image
gj124 in reply to Balaton52

Exactly the same. Mine was two years in Aug. Came out of hospital 1 year ago this month. Such alot has been sorted this year.

Balaton52 profile image
Balaton52 in reply to gj124

Hi! You are so right.. so much to sort, get used to and accept....what a journey we have been on!!! Must admit it took a while to accept my new lifestyle and the changes in every respect but every morning I am still here so things are always great! Hope things are improving with you and all the best for the future.....when things get too much (only rarely now) I always think of the 'distance travelled' on this new journey tru life!!! Will stop now before I bore you to sleep so take care and keep smiling!

Great to hear from another member of the An Survivors club lol Regards Mag

gj124 profile image
gj124 in reply to Balaton52

Thanks for that. You're right I sometimes have to check myself with how far we've come. There always seems to be something to sort out!

Be in touch again soon.

gj124 profile image
gj124 in reply to Balaton52

Thanks for that. You're right I sometimes have to check myself with how far we've come. There always seems to be something to sort out!

Be in touch again soon.

gj124 profile image
gj124 in reply to Balaton52

Thanks for that. You're right I sometimes have to check myself with how far we've come. There always seems to be something to sort out!

Be in touch again soon.

daisymay70 profile image
daisymay70

Thanks Alice for the link,I will look at it.Take care

LifesGood profile image
LifesGood

From Major brain surgery to Internet Entrepreneur

The Journey

The Luckiest Man Alive our holiday to Thailand 2009 almost ended in tragedy when I needed lifesaving brain surgery to drain a blood clot. We were into the third day of our three-week 3-day stay in Pattaya when I felt unwell while lying by the pool. We went back to our hotel room so I could lie down felt something go pop in my head followed the most violent headache, quickly realised something was seriously wrong. "One minute we were enjoying ourselves and then the next I nearly died,"

I was diagnosed with a subarachnoid brain aneurysm and underwent a six-hour operation on Saturday night. Surgeons pinned the blood vessel to stop the bleeding and fitted a tube to drain the blood clot from my head. My wife was absolutely petrified as the surgeons said it was touch and go whether I would survive,"

I remember nothing being in a semi conscious state but my wife told me that I was saying my goodbyes to her. It was 7pm Saturday night before they took me to the operating theatre the operation was to take 6 hours, she said, she did not sleep very much that night, but semi asleep, she said the phone in her room rang about 8:30 Sunday morning, she picked it up and said, Rob is that you, I said yes, Pauline I want to see you, she came down to intensive care to be with me. This was surreal, it had only been 8 hour since major brain surgery, and I called her from my bed in intensive care.

The week I was in intensive care is a blur I don’t remember anything about it I was heavily sedated. Drifting in and out of sleep but I knew that she was with me all the time. They moved me to a private room were my wife could join me I also had a nurse on 24 hour care to look after me. After about two weeks in the private room I was given the all clear to travel home I had to be escorted home by a nurse she came to the hospital to access my condition, she said, I was the most well looking sick person she has ever escorted home. This being down to the excellent medical care from the doctors and nurses at Bangkok hospital. Thank you, you saved my life.

Once home I had to retrain my brain, I could walk talk but not much else, I did not know how to turn the computer on at first, when I turned it on I just looked at it had no idea what to do, I had to find a program I could use to exercise my brain and get it working again the game I found was solitaire I played non stop for 6 months getting faster and faster with every game. I have no memory of the 3 weeks in Thailand only by the hundreds of pictures my wife took.

A few years later I decided to do something that would challenge me, I decided create a green eco friendly website. The Green Planet Advertiser, that was 2013 this was my final stage in fully recovering, three years later 2016 fully recovered decided to convert the website into a business

The journey has been long and hard its taken me 7 years to get to where I am now, the website has been created and uploaded onto the Internet. The next BIG challenge is to create a successful internet business.

Robert Allott

greenplanetadvertiser.com

You may also like...

aneurysm to the Braine

I am looking to meet othere people that suffered a aneurysm to the Braine.

Brain aneurysm

Hi new to this group. I’m having a coil fitted in two weeks time to my brain aneurysm. I need to...

Unruptured brain aneurysm

as mine isn't a brain injury. Diagnosed January with large unruptured brain aneurysm - surgeon says...

Brain aneurysm

suffered a brain aneurysm. It has completely turned my life upside down, I'd like to hear from...

aneurysm brain

with level five brain trauma injury due to a aneurysm she had had the drain put in her brain and...