Sandra's Brain Hemorrhage : Hello thanks for having... - Headway

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Sandra's Brain Hemorrhage

Miguetorre
Miguetorre

Hello thanks for having me in your group, a month ago my wife suffered a brain hemorrhage, em her left side is affected, she is recovering and starting therapy I guess she is doing fine but I would like to know of more cases to move in the right direction.

Thank you again.

23 Replies
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welcome to us lot! iam the wife of a B.I surviour do give the helpline a ring

Welcome to the forum (I'm going to call you Mig as it's easier !)

I had a Subarachnoid haemorrhage in Dec 2011 and am now living an independant life. At the stage your wife is at now, I was still hospitalised and just starting to grasp my situation.

I was unable to stand/walk for the first month and had a permanent, debilitating headache as a result of both the bleed and subsequent coiling operation to seal the ruptured anuerism.

My physio started at the 4 week point and I was discharged after 2 months. I had a recall appointment 3 months later where I was showed my scan (before & after) and the further MRI scans at 6 then 12 month intervals.

My main issues once home were poor balance and painful legs/feet which made walking difficult, headaches, dizziness, emotional lability and loss of short term memory.

I was determined (and unrealistic) enough to buy myself a new yellow bicycle as soon as I could navigate the internet. It was a couple of years before I could co-ordinate well enough to use it, but I still do as it's less challenging than walking.

I think the 3 year point was when I reached highest potential though, as an invisible illness, it went unnoticed from the start to those who didn't know me.

It seems the classic after effects are the headaches, memory issues and decreased mobility and the loss of inhibition which causes many people to behave inappropriately and speak without 'filters'.

But probably the biggest issue for most people is the fatigue. For the first couple of years (varies from person to person) I could have happily slept 24 hours per day, but in time this has regulated to the point where 8-9 hours sees me through.

But right now, don't be surprised if your wife is constantly exhausted and needs naps during the day and extra hours at night.

I have to say, I was (later) very saddened to hear how my family had worried, and visited daily after work for 8 weeks, whilst I was blissfully unaware of the whole debacle. So look after yourself as much as possible too !

Please don't hesitate to ask anything more specific Mig. I hope Sandra will go from strength to strength as time passes.

All best wishes to you both, Cat x

Miguetorre
Miguetorre
in reply to cat3

Your story is very motivational, I will tell it to sandra she is 45 and was a really good swimmer I think that will help she is strong and has a great attitude about the situation. She is starting therapy and has advance a lot her right shoulder has a lot of pain and we is still unable to move it but she can move her and and the low part of her harm. Also the she is able to move a bit her upper thigh but her inner thigh is hurting a lot and it seams discontent also her foot and toes are disconnected.

cat3
cat3
in reply to Miguetorre

Mig, it took me a long time to understand (and believe) that recovery after a bleed on the brain is a v-e-r-y slow process. And Sandra is still right at the beginning of that process.

At one month, she has the potential for massive improvement, especially with her fighting spirit. With the physio and swimming (which is the best possible exercise as it isn't weight bearing) I'm sure you'll both see

steady progress over the following months & years.

Persuade her not to overdo things, as exhaustion will slow down her recovery and can cause despondence. So pushing against her limitations is fine so long as she respects the signals to stop.

You seem like a good team ! Please keep us updated on Sandra's progress. Love Cat xx

Miguetorre
Miguetorre
in reply to cat3

Tks CAT I think she will want a yellow bike as well 😉

cat3
cat3
in reply to Miguetorre

Oh I do hope so mig ! Mine is still (5+ years on) a symbol of triumph & freedom.........xx 🌅

razyheath43
razyheath43
in reply to cat3

Did the bike Have to be yellow,or would any coulor have done?

cat3
cat3
in reply to razyheath43

Ha ha ! Yes Razy, it DID have to be yellow 'cause it felt symbolic for recovery. Yellow.......the colour of sun, daffodils, all things bright & shiny !

I love you Razy !! 😃.................xx

razyheath43
razyheath43
in reply to cat3

LOL thanks Cat love you two

cat3
cat3
in reply to razyheath43

How's that husband of yours getting along ? I know he underwent more treatment earlier this year...... and are you OK ? x

razyheath43
razyheath43
in reply to cat3

he is good, will need radiotherpy next year, as a caution and before that the plate will need to go in.thanks for asking

cat3
cat3
in reply to razyheath43

My oncologist called radiotherapy the 'Belt and Braces' part of treatment after a successful op.

I have to say, after a period of intense anxiety, the 3 weeks of radiotherapy was SO therapeutic. That wonderful machine and I became great friends and I was actually sad to leave those lovely nurses and the general atmosphere of reassurance.

Hope it's the same for Michael when the time comes !

Take care of yourselves Razy. 🌾🍀 Love Cat xx

razyheath43
razyheath43
in reply to cat3

AAAWWW thanks Cat. it is another part of the journey back to new normal,i did have a wobble when we found out though,but hey iam allowed! x

cat3
cat3
in reply to razyheath43

Have a good weekend m'love ! xx

Tks a lot I found this web page where they sell a subluxation sling subluxsling.org/ if anyone needs it

sandra is 45 and was a really good swimmer I think that will help she is strong and has a great attitude about the situation. She is starting therapy and has advance a lot her right shoulder has a lot of pain and we is still unable to move it but she can move her and and the low part of her harm. Also the she is able to move a bit her upper thigh but her inner thigh is hurting a lot and it seams discontent also her foot and toes are disconnected.

I had a SAH at 17 left side affected. A good resource for info is the Brain and Spine Foundation, also The Neurological Alliance. .............good luck with everything and remember .......'giving up is not an option' ;-)

Hi Mig

Don't worry, your wife will get better. It might change her in some ways but she will recover. I had an SAH in 2015 which worsened an already arthritic knee. This got me seen by an orthopaedic consultant and I now have a new knee. That was the silver lining to my "cloud". Just rremember it will take time but during that time she will keep on improving. My best wishes to you both.

Hi mig I'm glad to hear your wife is recovering from her haemorrhage people recover differently I was told that after a year that's what to expect which has left me balance problems and short term memory unfortunately I can not work now but this does not happen to everyone who has a heamorrage ! You will find this group a amazing set of people with similar experiences I wish your wife all the best and hope she continues to get well ! Take care david

Tks everyone, has anybody tried the a magnet therapy

cat3
cat3
in reply to Miguetorre

Don't think I've heard if this ; what does it involve ?

Miguetorre
Miguetorre
in reply to cat3

A doctor comes in and places magnets in specific places sandra had a sesión today and she moved a lot I hope it works I can explain better because I could not be present due to work but my parents where there

cat3
cat3
in reply to Miguetorre

Thanks Mig ; sounds interesting. I'll Google it. x

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