Lost

[Ollymitchard1985]

I have good periods of time when it seems. As thow nothing is wrong and then get 3 days plus of being in a dark weird mood my tbi was 2 years ago feel lost and frustrated on down days but Need to be seem to be fine hlp

[cat3]

Can you tell us, Olly, what treatment, if any, you're having or have had i.e. counselling, medication or CBT ?

[Kirk5w7]

I find I see-saw a bit like this, I'm extra kind to myself on those down days, more rest and time for myself, those days seem to be gone when I've got limitless energy and can race around multi tasking all the way.

Not very helpful I know, but like my consultant said it's all about managing the condition now, learning how to isn't easy, but you're halfway there recognising the different days xxxx Janet

[iforget]

I think we probably all have down days - people who do not have a BI have down days too of course... I find that for the most part I pootle along quite nicely in my own little bubble and then every so often reality hits and sends me spiralling into a very dark place. Thankfully it is less and less frequent as time passes and I am finding ways of managing it when it happens - mainly by withdrawing it seems because I am clearly aware at the time that I am not fit company at all....... and once it is gone it is of course forgotten along with everything else. I haven't been able to find any connection or trigger for when reality bites me on the bum, it just happens without warning and that is frustrating in itself.

Have you been able to identify anything that triggers your down days?

What happens when you get them...are you sad, depressed, angry????

Just wondering why you feel the "need to seem to be fine" ? (or perhaps I misunderstood that part?) By pretending all is well when it is not we can accidentally cut ourselves off form the help that we need.... and that may be available to us if only people knew we needed help.

My injury was 8 years ago and I still have the odd moment when I want to rage against the world... we're only human. While Santa is of course real ... Superman is a myth so try to cut yourself some slack...

[RogerCMerriman]

I certianly get very down days, doesn't take much to trigger it, I'm much more liable to miscaque something.

[Julesgettingthere]

Hello Olly

Did you text mean to say ' you need to appear to people to be fine' even tho your not inside ?

Jules

x

[Ollymitchard1985 in reply to Julesgettingthere]

Absolutely Julie x

[Ollymitchard1985 in reply to Julesgettingthere]

Yeah

[Julesgettingthere]

Hi Ya Olly

I thought it was just me that did that. My brain seems to fight against me talking about it in full and I have an urge to say 'everythings better, everything is ok'. when its not.

Its got me into bother a few times when I am speaking to people who are there to assess or help me.

Do you know why you do it ?

Its getting easier to resist the urge as time goes by, but i have lost out on treatment that I think might have helped me in the early days.

Jules

x

[Ollymitchard1985]

I seem ok on outside but on inside it bloody kills me x

[StaceM8]

Hiya Olly. I had the same thing for the first 10 years after my accident & they tried giving me all sorts of anti depressants which I really didn't want t take, maybe because of the stigma, but I was prescribed the mood stabilizer lamotrogen & it makes sooooo much difference - It really controls the lows. U still go low at times but it's more of a murky grey than a deep black chasm where it is so difficult t do anything, even get out of bed.

Ask your doctor about lamotrogen - it possibly saved my life, not that I can imagine committing suicide or anything cos I believe that that is such a selfish thing t do, but I can understand why people do, cos those dark places are horrible and luckily I do have the support of friends & family, but if I hadn't I really don't know if I'd be here tday - my head injury was 20 years ago so any questions feel free to ask ;o)

Stace